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About stooshiecat

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  1. Glad I'm not the only one :). The cardiologist discharged me after my diagnosis so it's just the GP seeing to me now but it's a nightmare trying to get an appointment. I asked for one the other day but the diary is booked up until the middle of September!
  2. I was diagnosed with POTS about 8 months ago and was put of Verapamil (lowest dose). I found an immediate change with it in regards to my heart rate - I went from 120-140 standing to 80-90. My GP decided to keep me on the low dose of Verapamil for a while to let my body adjust. My problem is, I'm getting all the POTS symptoms without the increased heart rate now. I can stand for longer without my HR shooting up but I still get really clammy/sweaty, tired and a bit breathless when I'm on my feet. Has anyone else experienced this? I also still get little episodes sometimes when I get
  3. Great thanks! I didn't want to make a fuss with the doctor is it was just my IBS playing up!
  4. I was diagnosed with POTS in October. The cardiologist sent some recommendations for medication to my GP after I had a bad time with beta blockers. The drugs he suggested were Verapamil or Ivabradine. The GP suggested I try Verapamil first because it has less side effects than Ivabradine. She gave me a months course (starting dose) and called me to check in after 2 weeks. At that point I was feeling pretty good. My POTS episodes had decreased drastically. I was only getting symptoms in the morning before taking my meds, in the evening before bed and when I was hot (eg heating too high o
  5. I'm from the UK but I don't have a diagnosis yet. Have most of the POTS symptoms but I'm waiting to see my doctor on Friday to see if they'll test me for it. Not really sure how referral works because all the stories I've read have been people in USA. Sorry to hear you're struggling so much. I can totally identify with feeling old. I'm only 33 and most days I feel like I should be claiming my pensions :D!
  6. I haven't had much experience with dysautonomia/POTS. I've had symptoms that have been getting worse for about 6 months now and haven't had a symptom free day. Yesterday felt a bit like a miracle. I slept great the night before, I woke up without a headache, ate 3 meals without feeling sick, was able to think clearly all day and my heart rate didn't go above 105. I did felt a little breathless when standing and got a bit of a headache at night but other than that I was like my old self. I thought I had turned a corner. Then I woke up this morning. I felt like I had been hit by a bus! I
  7. Resting HR 65-75 Sitting HR 80s (90s-105 on hot days or after eating) Standing 115-125 Walking 115 - 140s Exercise 150s - 180s
  8. Hi! I'm not sure what my BP is on the Propranolol and I've had to stop taking it now. I was at a doctor yesterday because of my constant headaches. He asked about other symptoms, felt my neck and told my it was tension with no mention of my other symptoms! I wish they'd look at my symptoms as a whole instead of individually. I read that, other than the tilt table, a 24 hour ECG is also used for diagnosis but mine didn't show any red flags. One of the reason I'm so frustrated that they're not investigating is I had a problem with my heart last year. I was going through pre-op
  9. Thanks for the replies! I was thinking about keeping a symptom tracking diary showing when I'm 'triggered' in the couple of weeks leading to my appointment. This should be helpful because sometimes when I get into the doctors office I forget half of what I was going to say. @Clb75 thanks for the advice about stopping the propranolol a couple of days before my appointment. I'm in the UK so for any testing (beyond blood tests) I'll need to wait for a referral to the hospital (which can take months) but it's probably a good idea to show the GP what I'm like without the propranolol lowering m
  10. Thanks for the response. I was beginning to think I was imagining the way propranolol was effecting me because I couldn't find anything like what I'm feeling when searching online. This whole thing just seemed to come out of the blue and I'm so sick of feeling exhausted all the time. I was almost in tears last night because it was like my brain wasn't working. I was trying to write a to-do list and I just couldn't focus and kept thinking of the same tasks over and over (I have to go to the shop, I have to phone the opticians, I have to go to the shop, etc) and it was so frustrating. I
  11. I've been suffering from numerous symptoms for about 5 months now. It started off as dizzy/light headed spells and nausea. My blood was tested and the found I was anaemic (my iron level were half what they should be but have since went back to normal). I started noticing a pattern to my dizzy spells. They would happen when on my feet for more than a couple of minutes. I would get breathless and my fitbit would show my heart rate ranging from 110-140 when my sitting heart rate is 75-80.. I got a bit worried when I had an 'episode' during physiotherapy where I almost passed out and had to
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