Clb75 Posted November 3, 2017 Report Share Posted November 3, 2017 Welcome new members as of 10/23/17. We hope this is a helpful resource for you. Please feel free to post an introduction or on a topic that you’re interested in. Halkur S Ryan C lynni Melissa7011 Julia P Kathlyn47 John K Janine Jake Donna K Debora J Linda Tami S Jayne the Daily Maniac Sea-poet Jonna shasta43 lpert Emma33 Katherine G Carla Mad96 Sam123 kimmedawn JP0324 Elastagirl17 Tiz tighidden JaydenD broncomom3 Selmaanna Traci L Alexisleann Gamoore14 KariDK MissyB Madisonjan7 Barbara G JojoR Maureen H Deb webb orion Tee Marie tallgirl509 Paige_B Christy R ShelleyE D Carson LynnB Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted November 3, 2017 Report Share Posted November 3, 2017 Huge list of new members! Welcome all! Quote Link to comment Share on other sites More sharing options...
WinterSown Posted November 3, 2017 Report Share Posted November 3, 2017 So nice to welcome new folks. Glad to have you here. Quote Link to comment Share on other sites More sharing options...
tighidden Posted November 11, 2017 Report Share Posted November 11, 2017 Hello! Glad I found you guys. Not so glad I have to be here though . I'm a 26 year old male that has hyperadrenergic POTs. I was steadily declining 2.5 years ago until I hit my nadir in 2014/2015. After doing a year of grant research for a master's program my health deteriorated to the worst it has been since 2009. I had to come home and live with my parents. Fortunatley, I have JUST gotten treatment with clonidine, bystolic, seroqul, lunesta, clonazepam, and amitripytiline after years of little to no treatment helping. I am on the upswing now so I am cautiously optimisitc..Going to finish this introduction at another time...to tired to finish now... Quote Link to comment Share on other sites More sharing options...
Clb75 Posted November 11, 2017 Author Report Share Posted November 11, 2017 Welcome, glad you found the site. Quote Link to comment Share on other sites More sharing options...
Aqua4fun Posted November 26, 2017 Report Share Posted November 26, 2017 Hello, newbie to this awesome site💛 and truly just am on a huge learning curve here.... that being said I never knew what was crashing me for years.... and I am a RN BSN. my journey has been filled with blessings as I am still here and I find that comforting. so let the learning begin as I suspect I am a H. POTSie. This November I invested in a Wahoo monitor paired with SweetBeatHRV app and am beyond words looking at my screens. I have lived flat for the past 5 years unless I was in our local community pool 5x week (deep compression) & local Ayurveda education/self-care Center. CRPS/bilateral neurogenic Thoracic Outlet Syndrome was my diagnosis —I was just flat. Never diagnosed as a POTSie until this April by my osteopath. So yes very glad to be here. thank you for all the sharing, xxo Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.