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Clb75

Welcome new members!

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Welcome new members as of 10/23/17. We hope this is a helpful resource for you. Please feel free to post an introduction or on a topic that you’re interested in. 

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Hello! Glad I found you guys. Not so glad I have to be here though :(. I'm a 26 year old male that has hyperadrenergic POTs. I was steadily declining 2.5 years ago until I hit my nadir in 2014/2015. After doing a year of grant research for a master's program my health deteriorated to the worst it has been since 2009. I had to come home and live with my parents. Fortunatley, I have JUST gotten treatment with clonidine, bystolic, seroqul, lunesta, clonazepam, and amitripytiline after years of little to no treatment helping. I am on the upswing now so I am cautiously optimisitc..Going to finish this introduction at another time...to tired to finish now...

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Hello, newbie to this awesome site💛  and truly just am on a huge learning curve here....

that being said I never knew what was crashing me for years.... and I am a RN BSN.

my journey has been filled with blessings as I am still here and I find that comforting.

so let the learning begin as I suspect I am a H. POTSie.

This November I invested in a Wahoo monitor paired with SweetBeatHRV app 

and am beyond words looking at my screens.

I have lived flat for the past 5 years unless 

I was in our local community pool 5x week (deep compression) & local Ayurveda education/self-care Center.

CRPS/bilateral neurogenic Thoracic Outlet Syndrome was my diagnosis —I was just flat.

Never diagnosed as a POTSie until this April by my osteopath. 

So yes very glad to be here.

thank you for all the sharing,

xxo

 

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