JacobyD Posted February 23, 2004 Report Share Posted February 23, 2004 Just an update for those of you who know how much trouble I have been having with my throat and swallowing.I was just accepted into a Clinical Study at NIH specifically for diagnosing Dysphagia (Protocol # 87-CC-0160).I will be spending about 6 hours at the hospital while doctors who specialize in swallowing disorders (not just regular ENTs) perform several tests to try and determine the source of my throat 'episodes' which prevent me from swallowing, talking, eating, and which often lead to choking.I have been fighting this symptom for a very long time and feel this is my best chance at getting a diagnosis and possibly finding some relief as there are also Clinical Trials at NIH that include new technologies for aiding people with swallowing difficulties.I know its not the OI study, but I thought I would post here as I have received so much support in the past when dealing with all of my autonomic related symptoms. I will post the results when I return next Wednesday! Quote Link to comment Share on other sites More sharing options...
justme Posted February 23, 2004 Report Share Posted February 23, 2004 Good luck!!! I hope they are able to find something and can provide you with some type of relief. Luckily my wife doesn't run into this and I'm glad. It would scare the life out of me and crush me. My prayers are with you. Quote Link to comment Share on other sites More sharing options...
futurehope Posted February 23, 2004 Report Share Posted February 23, 2004 Dan, Great news! Does that mean that they will be evaluating you next Wednesday, February 25th, or on March 3rd? Quote Link to comment Share on other sites More sharing options...
ethansmom Posted February 23, 2004 Report Share Posted February 23, 2004 YAY!! I am so happy for you Dan, I really hope you get some answers. I've been following your story and really hoping and praying that this is something you won't have to deal with much longer. Keep us updated!! Quote Link to comment Share on other sites More sharing options...
JacobyD Posted February 23, 2004 Author Report Share Posted February 23, 2004 Thanks for the support! I will be tested on Tuesday, March 2nd and will spend the night with relatives in the DC area and return home on Wednesday. Keep your fingers crossed! Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted February 23, 2004 Report Share Posted February 23, 2004 Hooray! I know you were really hoping to get in. Can't believe you got in so quick...that is WONDERFUL. Make sure you keep us updated!Michelle Quote Link to comment Share on other sites More sharing options...
Jackie Posted February 24, 2004 Report Share Posted February 24, 2004 What wonderful news! You have my prayers and support. I just have a feeling this will bring a much-needed breakthrough for you! Keep us posted! Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted February 24, 2004 Report Share Posted February 24, 2004 Dan, you know I'm ALWAYS in your corner. See ya back at the pond! Nina Quote Link to comment Share on other sites More sharing options...
EarthMother Posted February 24, 2004 Report Share Posted February 24, 2004 Good Qi (Chi) your way.EM Quote Link to comment Share on other sites More sharing options...
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