shathaway0811 Posted January 1, 2016 Report Share Posted January 1, 2016 Hello! I hope everyone is doing well and enjoying the holidays! I recently went to the doctor while home in Asheville to get checked out in regards to some chronic nausea I've been experiencing. By chance, my normal GP wasn't there and so I saw another woman who practices at that clinic. She, after seeing my vitals which were 98/62bp and a 105 hr just chillin in the chair haha, asked if I had heard of POTS. I said that I had, but no one has brought it up as a specific diagnosis. She then did some orthostatic tests and also explained my gi issues were most likely related to the POTS/dysautonomia. I was so freaking relieved that a physician brought these things up unprompted, and as she also treats EDS patients and is a specialist in the area, will def be seeing her from now on! Also, I just wondered if anyone else experiences any visual weirdness with a brain fog type feeling? My POTS symptoms have been worse recently and I've also noticed my eyesight is worse, especially in the dark/dimly lit areas and when yhwres any change in light brightness. A little disconcerting and so just wondered if anyone else experiences this? Quote Link to comment Share on other sites More sharing options...
lewis Posted January 1, 2016 Report Share Posted January 1, 2016 My eyes are more sensitive to light changes and take longer to adjust to brightness. Both my hearing and eyesight are really sensitive to change. Quote Link to comment Share on other sites More sharing options...
dancer65 Posted January 1, 2016 Report Share Posted January 1, 2016 I have blurred vision practically when I am tired. I also am very light sensitive Quote Link to comment Share on other sites More sharing options...
Foggy01 Posted January 1, 2016 Report Share Posted January 1, 2016 Yeah there's all these strange and seemingly unrelated perceptual changes that seem to go along with POTS and other similar syndromes. Many people seem to have these things. Quote Link to comment Share on other sites More sharing options...
statesof Posted January 1, 2016 Report Share Posted January 1, 2016 My eyes take longer to adjust from light to dark, like when driving at night. Usually when I start pushing my body my vision is the first thing that changes usually things start looking "hazy" and it gets to be more difficult to focus on any one thing. Quote Link to comment Share on other sites More sharing options...
m@t Posted January 1, 2016 Report Share Posted January 1, 2016 Have any of you chaps got differences between your left and right eyes? Have your pupils been observed to be slow to respond? Mine have been observed to dialate at different rates and to different amounts when symptomatic. I do wonder if this is some sort of strange migraine effect without the headache.I actually get a different colour rendering in each eye, everything on one side is slightly redder than the other! Quote Link to comment Share on other sites More sharing options...
artsystacey Posted January 2, 2016 Report Share Posted January 2, 2016 Yes, I can totally relate to the eyesight thing. Blurred vision and spots and zig zag lines. Sometimes I see things that look like floaters but they pulse in time with my heart beat. Also I'm very sensitive to bright lights or light changes. Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted January 2, 2016 Report Share Posted January 2, 2016 I've had my vision checked and no concerns.I get blurry vision, pulsing with heart beat, dry eyes. Yay for finding a local doc concerned and aware of dysautonomia. That's a true Christmas gift Quote Link to comment Share on other sites More sharing options...
Debbie Rose Posted January 5, 2016 Report Share Posted January 5, 2016 Zig Zag LINES !!! YES !! thank you!!! Had it again recently, but first experience was over 5 years ago with what I now think was my first flare before a second one 2 years later. And I have blurry vision with fatigue and at end of the day. Went thru all the evals or MS at that time (first time) because of severe fatigue after being in 70 degree full sun weather along with visual issues-all negative-and these were neurologists but no mention of knowing about autonomic dysfunctionSo SHathaway, CONGRATULATIONS !! So is that Asheville,NC?? If so, could we talk about the doc you found? Duke in Durham just started a syncope clinic that works up for autonomic dysfunction but so far only does tilt table tests-nothing else and I need answers (as do we all) But great to hear or you !!Debbie Quote Link to comment Share on other sites More sharing options...
Saralu Posted January 5, 2016 Report Share Posted January 5, 2016 I have dry burning eyes and sometimes feel like someone dimmed the light... You are lucky to have found a doctor who actually knows about the subject. I told my new internist that I had had a positive Tilt test and had been diagnosed with dysautonomia a few weeks before our appointment and he acted as if I had said nothing important. Fortunately, I guess, my BP dropped to 84/40 while I was at his office, so he finally believed that something was quite not right with me. We are still looking for possible causes. Quote Link to comment Share on other sites More sharing options...
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