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dancer65

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About dancer65

  • Rank
    Advanced Member
  • Birthday 02/26/1965

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  • Gender
    Female
  • Location
    uk
  • Interests
    ballet cooking

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  1. Pleased this all worked out for you , hope you manage to get things more under control . X
  2. If I remember correctly taking them together can cause gastric inflammation .
  3. I have POTS and VVS and if I’m stressed physically or emotionally my HR goes high and the addrellin give me the shakes . I find deep breathing and meditation helps in these situations but it can be hard to concentrate when I feel like that ! If you are unsure about medication I would explain to Dr you would like a bit more information . Medication often is trail and error for each patient reacts differently. I started on florinef which helped only a bit but when they changed me to midodrine the improvement was significant. i hope all goes well for you keep us posted x
  4. Oh sorry if I made it unclear I was trying to say how highly people speak of Dr Gupta! I know going privately can add up quickly if you have to pay for tests etc, one reason I went NHS myself
  5. I agree with Pistol having the correct diagnosis is very important to get the best treatment. I hope your consultant is willing to discuss this with you but if not I would go back to GP to discuss your concerns and if needs be ask for a referral for second opinion.
  6. You should be able to be referred via NHS to a POTS consultant , I was referred from Wales to London But of course it’s down to your GP. I only waited 3 months to see my consultant but I had already had my diagnosis Dr Gupta is a lovely man I have been to some of his seminars in York on POTS and other health issues. I am a member of another POTS group and everyone who has him as their consultant speaks highly of him .
  7. Hi I am in Uk. Have you looked at STARS website, they are a charity for syncope and POTS as well as other cardio conditions . They have amazing staff who you can speak to for help, support and advice . I ended up joining £15 for the year for their newsletter and their literature which is useful for giving out to those who don’t know about dysautonomia. They helped me find a consultant who my GP referred me to in London, the syncope unit at Royal Brompton. The other website is POTS uk who have info and lists of consultants.
  8. Well done great achievement! I grew up in a coastal town I love that sea air and I could listen to the waves for hours
  9. Hi Pistol The swelling on my eyes are very slowly going but still burning and itching , my thighs are covered in blisters which are slowly drying up but I think the heat exasperates the itching and it’s now two weeks today since I laid the bark ! Feel better pots wise this morning spent a few days doing not much at all ! I could truly kick myself for being so careless I should know better . The reaction took 24 hours of laying the bark so it took me a few days to work out what had caused it . yes I too react badly to bites I suppose that will be the next problem to overcome ! I had
  10. Hi everyone Hope you all doing ok in these strange times. We are still in lockdown 8 weeks and counting , so I have been using this time to get all those things done I never have the energy for ! I have managed to be very productive as long as I stick to my strict regime. I just wanted to share a story which proves that even when we feel better we have to keep been thoughtful of everything we do ! So I got the garden weeded and planted up and to help with easy maintenance I decided to use bark mulch, I have used this in the past no issues . Due to lockdown I had to use different sup
  11. Defiantly ! Stormy weather gives me migraines . I have allergies which induce asthma and facial swelling, rashes etc if I don’t remember to take my antihistamines. Last year I was a bug magnet and their bites lasted weeks , they never use to like me so something has changed in my body I reckon.
  12. Thanks for sharing interesting article x
  13. That’s great news I am thrilled for you ! Hopefully this will be continue to you feeling better . Midodrine gave me energy to do more things , exercise more and therefore I was actually tired not just fatigued so my insomnia improved . I really hope this gives you the ability to break the cycle of symptoms so life is not such a fight xx
  14. Thanks for sharing , like you I didn’t understand all of it but it was still very interesting .
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