dancer65
-
Posts
550 -
Joined
-
Last visited
dancer65's Achievements
-
So sorry you are having a bad time after COVID I really do hope you can find something that helps . Steroids always make me hyper and then exhausted once I come off them , hopefully weaning slowly will cause as little disruption as possible . Take care 💗
-
I use to, Sharp pain that would make me clutch my chest . Don’t get them now unless my BP is very low
-
I find buscapan really helpful for my IBS. I will also take probiotics if I get a flare up. Certain foods affect my IBS but stress is my main trigger. I hope you feel better soon
-
UAB autonomic testing results.
dancer65 replied to CallieAndToby22's topic in Dysautonomia Discussion
Pistol this is really interesting I believe my pots is influenced by chronic inflammation . Just started a pots flare two weeks ago all my auto immune diseases in full flare up along with swollen finger joints burning and crawling skin sensation which is only helped by ice packs . I am going to have a go at low histermine diet and Turmeric . -
Pistol so sorry you have been so ill . I hope you get better soon . Look after yourself hugs 🤗
-
Hi sorry to read of your problems . I have never had anything like that , it sounds unpleasant to say the least .
-
Yes my BP drops rapidly and then my HR drops too , I will usually faint if I’m not quick enough to lie down then afterwards both my BP and HR are all over the place , I just had to rest and concentrate on breathing and within a couple of hours it will settle down
-
UAB autonomic testing results.
dancer65 replied to CallieAndToby22's topic in Dysautonomia Discussion
I have been on midrodine for 6 years, it has been a wonder drug for me .it took some time to see improvements that lasted and I have never had side effects . Hope all goes well for you -
My biggest crash was in 2014 , BP would run at 60/40 most of the time I felt dreadful all the time and was so dizzy I crawled around on my hands and knees ! I read about this and started at 1 minute at a time as often during as I could increasing the time as much as I could . It was tough but I believe it helped to literally get me back upright . After a while I found I could be upright as long as I was moving and not standing still . good luck !
-
Being mandated to take the vaccine. I am scared!
dancer65 replied to badhbt's topic in Dysautonomia Discussion
A few years ago I had bad reaction to flu jab but last year I was ok . I was worried about COVID jab and had two Pfizer jabs and no really bad reactions , in fact my CFS had actually improved a little bit. -
I hope you can get this sorted , take care
-
It’s a shark , I went for the middle choice as it longer battery life it was reduced in the sale. It also has anti tangle brush so you don’t get hairs twisted in the brushes .
-
Yes I get spikes in the night and I usually wake up . I thought it might be that a noise has disturbed me , I’m one of those people who jumps out their skin for very little reason !
-
Thanks for posting the link !
-
A trial is going ahead at Stanford for a cooling bracelet to try help regulate body temperature . if you want to read about it search Daily Mail cooling bracelet , POTS was mentioned , sounds interesting. sorry don’t know how to copy link on my phone !