
dancer65
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0 NeutralAbout dancer65
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Rank
Advanced Member
- Birthday 02/26/1965
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Gender
Female
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Location
uk
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Interests
ballet cooking
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1,923 profile views
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Sorry you haven’t found any thing that helps you , must e awful putting up with problems since you were a child
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Thanks Pistol , been rather a worrying morning ! The good news I haven’t loss pelvic sensation at the moment , if I do then it is classed as a emergency 24 hours to have surgery or incontinence is not reversible . It is caused by herniated disc
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Pistol I just wanted to thank you for pushing me to go to Dr . I don’t have urine infection but due to loss of sensation I have to have MRI to rule out Cauda equine syndrome . If the loss of sensation progresses any more then I will have to go immediately to hospital . Trying to stay positive that this is more a localised problem than being caused by my spine . 🤞🤞🤞 Again thank you I really was ignoring this problem I was just putting it down to POTS !
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How to get blood flow to brain?
dancer65 replied to CallieAndToby22's topic in Dysautonomia Discussion
Just sending you best wishes and I hope you can get some help 💗 -
Thanks pistol been fine today doesn’t seem to have made my pots any worse like the flu jab did . Only had sore arm so very pleased !
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Strange panic attack from waking up
dancer65 replied to racingheart77's topic in Dysautonomia Discussion
Yes I had this when I was at my worst , it’s horrible feeling . I am pleased to say as I have got my insomnia under some control it has gone away . I hope this improves for you. -
I got my vaccine today sore arm very quickly and felt a bit odd a couple of hours after it just for a short time . Did feel quite dehydrated this evening but feeling fine now. Will see how I feel tomorrow . just thought I’d share !
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Pistol thanks for your help ! I will look into Prelief. Yes I’m 56 soon yikes it’s scary!!!
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Hi pistol thanks for replying . I shouldn’t complain really I have been doing really well since lockdown has forced me not to work ! I can relate to your symptoms I have always been teased for the amount of times I need the bathroom since childhood . I was told after my hysterectomy I have a child size bladder so that doesn’t help . I don’t get any pain it’s just a weird feeling “out of control” and often return immediately to the bathroom as I feel I need to go again !! It’s also very intermittent. My last urine test was about 10 years ago when I was going to be tried on an a
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Yes I get headaches
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I often get the urgent need to pee when my bladder is not full but recently I have been experiencing numbness half way through emptying my bladder , so much so I can’t feel when I have finished . This is new symptom for me could it be ralated to POTS? thanks for any input
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Thanks for sharing . After reading this I reallly would like to buy one of these to try , maybe once we get some normality back from this pandemic and our lockdowns and when I am working again . I did look up for practitioners offering treatment but they are all 3 hour drive away couldn’t cope with that once a week !
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Hi I am sorry this has left you in a flare low bp is so horrible ! Really appreciate you sharing your story, wishing you and your family a speedy recovery . xx
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Love this community ! Have a lovely Christmas everyone stay safe 💗