Wmtate Posted July 28, 2014 Report Share Posted July 28, 2014 I am keeping my home at 75 degrees F and I am still too cold. My blood count is good and thyroid checks out. Any ideas? Quote Link to comment Share on other sites More sharing options...
Katybug Posted July 28, 2014 Report Share Posted July 28, 2014 Have you been to a rheumatologist to be evaluated for Raynaud's syndrome? Quote Link to comment Share on other sites More sharing options...
corina Posted July 28, 2014 Report Share Posted July 28, 2014 I find that mestinon is an excellent help to keep my temp well regulated! Quote Link to comment Share on other sites More sharing options...
little_blue_jay Posted July 28, 2014 Report Share Posted July 28, 2014 When I'm in a flare I am perpetually cold. Last flare we were in a heat wave here and there I was on the sofa with a comforter up to my chin, hands and feet cold the whole day. Course I also had barely any appetite and hardly ate - that wouldn't help the being cold issue! My TSH is always low which means my thyroid is running just fine. Don't know if your hands just being cold would qualify as Raynaud's or do they have to be blue or whitish as well? Quote Link to comment Share on other sites More sharing options...
E Soskis Posted July 29, 2014 Report Share Posted July 29, 2014 The autonomic dysfunction keeps me either cold as ice or so hot, I feel like I'm going to melt. My skin feels like it has either been dumped in ice water or heated to a crispy crunch on a grill. All I know to do is keep a sweater in one hand and a fan in the other.... Quote Link to comment Share on other sites More sharing options...
Wmtate Posted July 30, 2014 Author Report Share Posted July 30, 2014 My hands and feet are actually the only thing about me that stays warm. If I continue to stay cold for 30 minutes or more I begin to have cold sweats and that is miserable. I have to change clothes since I am so wet. This is really strange since in 95 f degree weather I never sweat since people with my problem never sweat from heat. I will look up Raynaud disease since I do not know anything about it. Quote Link to comment Share on other sites More sharing options...
looneymom Posted July 30, 2014 Report Share Posted July 30, 2014 Very low vitamin D levels can cause this symptom. Have you had these levels checked lately? Quote Link to comment Share on other sites More sharing options...
Wmtate Posted July 31, 2014 Author Report Share Posted July 31, 2014 Vitamin D is good , but I still take a Dailey vitamin D. Anyone else have any idea? Quote Link to comment Share on other sites More sharing options...
Wmtate Posted August 1, 2014 Author Report Share Posted August 1, 2014 The temperature has dropped from 92f to 82f and I am misable cold. Something is not right. I keep asking my doctor but nothing. Quote Link to comment Share on other sites More sharing options...
blueskies Posted August 3, 2014 Report Share Posted August 3, 2014 E. Soskis describes how I often feel. I'm nearly always too hot -- been diagnosed with ERYTHROMELALGIA, too -- but sometimes I'm freezing cold. I can go from waking with skin burning hot as well as feeling too hot internally on one night, to waking a couple of hours later in a cold gross sweat and I have to get up and change my clothes. i often have faster heart rate witih the feeling of being too hot. But pulse rate is fine when I'm too cold. On the list of pots symptoms on this site you will find temperature dysregulation listed as a symptom. You could try suggesting Raynaud's to your doctor. Some people find treatment that helps I think. blue Quote Link to comment Share on other sites More sharing options...
Wmtate Posted August 4, 2014 Author Report Share Posted August 4, 2014 I reviewed Raynaud and does not seem to fit Quote Link to comment Share on other sites More sharing options...
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