spinner Posted January 23, 2014 Report Share Posted January 23, 2014 My sister is a nurse. And i wish id never even begun to describe any of my medical problems because she considers herselfsome kind of Neurologist with a Psychology degree.She blurts out any kind of advice/thoughts that cross her mind and i had to basically cut her off.I've tried to recently reconcile but even then she emailed some more unsolicited advice.......both medical and observational (everyone has chronic disease!)Moral of Story: If ANYONE starts this barrage of infuriating behavior, make it immediately clear that you love thembut you have no intention of letting them giving any advice whatever. "My Neurologist. at Cleveland Clinic is handling it" or whatever is best. A few of these people you will probably have to cut out of your life entirely. Quote Link to comment Share on other sites More sharing options...
dkd Posted January 23, 2014 Report Share Posted January 23, 2014 That's why I don't talk about my condition to people anymore. If they ask how I'm doing, I say 'just fine'. Too bad it's your sister though. That's tough when it puts a strain on family relationships. My hubby's the only one in my family that knows and I don't even talk to him about it much. Quote Link to comment Share on other sites More sharing options...
spinner Posted January 24, 2014 Author Report Share Posted January 24, 2014 Yep, we just have to learn that. Especially with "nurse experts" or ilk.NOt to typecast. But she's been simply unbearable.I sent reference to dysautonomia and she said "so youre saying youre suffering from an infant disease"??She's just a really obnoxious person beyond this whole thing. Quote Link to comment Share on other sites More sharing options...
Katybug Posted January 25, 2014 Report Share Posted January 25, 2014 Spinner,I'm sorry your relationship with your sister is in a bad place. For a different reason than medical issues, I also have a strained and strange love/hate relationship with my sister. It's really difficult because I am a family oriented person. To learn to let go of the people closest to us when they become toxic is just so hard. Just remember that forgiveness is more for you and your well being than it is for her. Trying to convince someone who wants to have their head in the sand is only an exercise in frustration. Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted January 25, 2014 Report Share Posted January 25, 2014 My sis was incredibly interested in my symptoms before I got a diagnosis, now she won't talk about my illness because I'm " still the same person and not defined by my illness". I guess it wasn't a terminal illness, so oh well Quote Link to comment Share on other sites More sharing options...
yogini Posted January 25, 2014 Report Share Posted January 25, 2014 My sister doesn't even ask. I've felt bad about that in the past, but maybe that is better than constantly getting unsolicited advice! Family, can't live with them, can't live without them. Quote Link to comment Share on other sites More sharing options...
E Soskis Posted January 25, 2014 Report Share Posted January 25, 2014 I'm sorry Spinner - it would be nice to have family that could rally around and uplift - but, it does not seem you have this - I gave up a long time ago attempting to explain anything about my disease to most people, including family - for the most part, no one really wants to hear it nor do they particularly care - I don't have to contend with unwanted advice because I simply don't talk about "it". I also learned a long time ago the old adage that we can't teach a pig to sing...it annoys the pig and it just can't be done! Quote Link to comment Share on other sites More sharing options...
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