pm72fl Posted August 8, 2013 Report Share Posted August 8, 2013 Hi everyone! How many of you take or have taken Cymbalta? Is it helpful? How are the side effects?I have POTS, NCS, Autonomic/Sudomotor Neuropathy, Chronic Migraines w/ auras, Gastroparesis, Raynauds and now...Ta Da... FIBROMYALGIA!! My one Dr wants to start me on Cymbalta but wants to consult with my Neuro first due to the side effects...especially the fainting upon standing! ( Which I agree is an issue already).Have you all had any benefit from this drug? Quote Link to comment Share on other sites More sharing options...
Christy_D Posted August 9, 2013 Report Share Posted August 9, 2013 My son tried Cymbalta with Abilify a couple of years ago. It wasn't helpful or hurtful to him. I was hopeful that it would help after reading a post(on a different forum) by a mother whose two daughters saw drastic improvement on high dose of Cymbalta. Unfortunately we didn't get any improvement, but at least it didn't cause him to get worse either. Quote Link to comment Share on other sites More sharing options...
looneymom Posted August 9, 2013 Report Share Posted August 9, 2013 My son was started on a very low dosage but after 48 hours his heart rate started racing. So he had to stop taking it. Quote Link to comment Share on other sites More sharing options...
JenLR Posted August 9, 2013 Report Share Posted August 9, 2013 I took it for four days and was absolutely miserable. I felt like I was losing consciousness for two solid days. I couldn't lift my head enough to even use a pillow. I also had a lot of stomach issues with it. The side effects weren't worth it for me, but hopefully you will have much better luck! Quote Link to comment Share on other sites More sharing options...
IceLizard Posted August 9, 2013 Report Share Posted August 9, 2013 Eight years ago I when I saw Dr. Blair Grubb, he told me that SNRIs are sometimes more helpful than SSRIs for dysautonomia. He put me on 20 mg once a day and it seems to have really helped. The body aches are much less or gone and it improved my dysautonomia symptoms and carbohydrate tolerance. This is the minimum dose you can take, and when I try to increase it I get side effects like agitation and insomnia. When I try to stop it, the body aches return and my dysautonomia symptoms worsen. If you'd like to try it I recommend starting with the smallest dose possible. Quote Link to comment Share on other sites More sharing options...
Psalm 23 Posted August 9, 2013 Report Share Posted August 9, 2013 My Rhematologist prescribed Cymbalta for me several years ago for fibromyalgia. I had too many problems with being nauseated and jittery and so I discontinued it. I realized later that for me an SNRI was probably not a good drug choice as I already had high NE levels and I should think that particular type of medication would raise the level even higher. I hope this medication or another fibromyalgia medication is helpful for you. It really is trial and error in finding the right one. I went through quite a few before finding one that helped me. Janet Quote Link to comment Share on other sites More sharing options...
cupcakemomma5 Posted August 9, 2013 Report Share Posted August 9, 2013 I am on 60mg of cymbalta daily, do i see a difference, a little. It has helped with the anxiety i never experienced until the potsie dx.As for side effects, not that much (I am already dizzy, and insomnia has come with my other meds)For me I do prefer cymbalta to Cipralex or celexa. I did ask my pharmacist about zoloft, and he stated that zoloft is an older drug and cymbalta is his sister drug (best was to describe it I guess)Good luck with which ever you choose. Med changes are always a pain in the patooty Quote Link to comment Share on other sites More sharing options...
misstraci Posted August 9, 2013 Report Share Posted August 9, 2013 I took it also but with no help or hurt so we stopped. Good luck. Quote Link to comment Share on other sites More sharing options...
pm72fl Posted August 9, 2013 Author Report Share Posted August 9, 2013 Thanks everyone for your input! The side effects seem pretty intense and I will definitely talk it over with my Neuro before starting this med. Sometimes medicine side effects are like adding a whole new illness to our already long list of stuff! Quote Link to comment Share on other sites More sharing options...
Chaos Posted August 10, 2013 Report Share Posted August 10, 2013 I took it for a few days.My joint/muscle pain was improved but the other side effects were so miserable I couldn't stay on it. Quote Link to comment Share on other sites More sharing options...
Natops Posted August 10, 2013 Report Share Posted August 10, 2013 My doctor and I just discussed Cymbalta - he said it would make my dysautonomia worst and he did not recommend it. Quote Link to comment Share on other sites More sharing options...
trice125 Posted August 10, 2013 Report Share Posted August 10, 2013 Cymbalta made me sick as a dog. Quote Link to comment Share on other sites More sharing options...
vemee Posted August 12, 2013 Report Share Posted August 12, 2013 While on cymbalta my main problem was several daily instances of dry heaves due to the increased levels of norepinephrine. It didn't really help my pots symptoms. The worse part was coming off the drug: I became extremely moody and almost homicidal for a couple of days. Quote Link to comment Share on other sites More sharing options...
PackersFan Posted August 12, 2013 Report Share Posted August 12, 2013 It was not goo for me either. I took it towards evening and woke up the next day with sweat, shaky/jittery feelings and had to go back and lay down and call off work. Was rough stuff for me. Quote Link to comment Share on other sites More sharing options...
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