davecom Posted May 9, 2013 Report Share Posted May 9, 2013 Yes I have presented this short note by doctor Blitshteyn to my doctors that highlights that the seemingly psychological symptoms are actually physical:http://jnnp.bmj.com/content/80/3/339/reply#jnnp_el_4620I think it is very helpful to highlight a few lines of it and present it to your primary care doctor or non-POTS specialist cardiologist. Quote Link to comment Share on other sites More sharing options...
badhbt Posted May 9, 2013 Report Share Posted May 9, 2013 Thanks Davecom...now that is what I would love to send to all my Doctors. Quote Link to comment Share on other sites More sharing options...
Kellysavedbygrace Posted May 10, 2013 Report Share Posted May 10, 2013 Kudos Naomi! Funny. I have been thinking about this very need here locally. In the last 10 days I have had 3 newly Dx POTS patients contact me because they heard I had POTS. - a sixth grade boy in my daughter's school, referred by a mother who knew me- a woman referred to me by my PCPs nurse- a woman referred to me by my hairdresser- diagnosed by some of my same docsAre these brochures that I could get several copies of and attach a personal note to them? Quote Link to comment Share on other sites More sharing options...
Psalm 23 Posted May 10, 2013 Report Share Posted May 10, 2013 How wonderful. I'm getting my list together. Thank you Naomi. Quote Link to comment Share on other sites More sharing options...
Rachel Posted May 11, 2013 Report Share Posted May 11, 2013 For those who may not know, DINET also has a general informational brochure that you can download and print at home. The brochure link is found on our homepage, but here is a direct link: http://dinet.org/images/DINETservicesbrochure2.pdfThe brochure that Naomi is mailing out is one that was created specifically for doctors. It is a little more technical. This print-at-home brochure may be more appropriate if you are wanting to pass out brochures to friends and family.DINET's mailing address recently changed. The address on the brochure is not current, unfortunately. I'm working on getting it edited. Meanwhile, our mail is being forwarded to our new address, and the forwarding will continue for 8 more months. I'm hoping that by the end of next week I will have an edited version of the brochure to put on the website. Quote Link to comment Share on other sites More sharing options...
tachyfor50years Posted May 12, 2013 Report Share Posted May 12, 2013 Thank you Rachel. Quote Link to comment Share on other sites More sharing options...
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