Tobiano Posted February 26, 2013 Report Share Posted February 26, 2013 Someone caught a video of part of an episode today. It’s really, really strange to watch back after but I did notice some new things. I am wondering if this happens to anyone…When I’m starting to feel better, and my vision is starting to return, I actually tend to close my eyes. I open them for short moments but can’t seem to focus my eyes (they roll up and/or to the side). At this point, I remember that things are still a bit blurry and spinning. In my semi-loopy state apparently I told someone that she had 6 eyes today!! It really did look like it. Slightly embarrassing but it gave everyone a good laugh. Everyone knows I’m feeling much better one my eyes stay open and I can focus on people while they are talking to me. Does this happen to anyone else? Some days I just feel like my body has become so wacky. Quote Link to comment Share on other sites More sharing options...
Angela Posted February 26, 2013 Report Share Posted February 26, 2013 yeah i noticed i did that back in the day when I had one too many. I don't think I do that anymore tho unless I am at work and trying to read something while moving my head to see comparisons of paper to paper..btw I have perfect vision so not sure why. Quote Link to comment Share on other sites More sharing options...
Angela Posted February 26, 2013 Report Share Posted February 26, 2013 i meant to add that I don't really know if my eyes roll but closing one eye helped, especially driving, before I got dx'd when I was experiencing tunnel vision or something to that nature. Quote Link to comment Share on other sites More sharing options...
puppylove Posted February 26, 2013 Report Share Posted February 26, 2013 On my very worst POTS days my eyes flutter when I try to stand. I don't really know if they roll though. Quote Link to comment Share on other sites More sharing options...
Tobiano Posted February 26, 2013 Author Report Share Posted February 26, 2013 Maybe that's the right word! A few weeks ago I had blood drawn. When I went to stand up after the nurse said my eyes were fluttering. Quote Link to comment Share on other sites More sharing options...
Rachel Cox Posted March 3, 2013 Report Share Posted March 3, 2013 Mine roll and go in different directions when I am having a very bad time of things. It doesn't matter how much I blink I can't get control of the little suckers! It's one of the more frightening things. Quote Link to comment Share on other sites More sharing options...
Tobiano Posted March 3, 2013 Author Report Share Posted March 3, 2013 Exactly Rachel!! Every time I blinked or closed then opened my eyes they would be looking in a completely different direction. The person I was with said that sometimes one stayed focused in the middle and the other rolled. So strange. Quote Link to comment Share on other sites More sharing options...
khaarina Posted March 4, 2013 Report Share Posted March 4, 2013 Not sure if my eyes roll or flutter, but I do find myself squinting a lot in the evening as my last dose of Midodrine wears off. I skipped my follow up appt with the opthalmologist, probably shouldn't have lol. Quote Link to comment Share on other sites More sharing options...
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