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Rachel Cox

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About Rachel Cox

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    Advanced Member
  • Birthday 09/25/1974

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  • Gender
    Female
  • Location
    Auckland, New Zealand

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  1. From the editor: The following is a turn from the style and intent of our usual content . This is a creative writing piece about the sensations and experiences of one woman living with dysautonomia I hear footfalls, voices. Light shifts the shadows on my eyelids. But I cannot move. I am suspended, somewhere between asleep and awake. Is it night? No, I can feel the warmth of the sun, a band of warmth pinning my legs to the bed. It slides through the window, deceptively light. How does it imprison me here, a concrete statue, prone? I try to lift my head but it won’t move; my mouth will
  2. From the editor: The following is a turn from the style and intent of our usual content . This is a creative writing piece about the sensations and experiences of one woman living with dysautonomia I hear footfalls, voices. Light shifts the shadows on my eyelids. But I cannot move. I am suspended, somewhere between asleep and awake. Is it night? No, I can feel the warmth of the sun, a band of warmth pinning my legs to the bed. It slides through the window, deceptively light. How does it imprison me here, a concrete statue, prone? I try to lift my head but it won’t move; my mouth will
  3. A couple of years ago, I was at a function. I was talking to a doctor acquaintance about life, the weather, and Dysautonomia, as you do. Well, when you are me, you do! I never, ever pass up an opportunity to answer questions about Dysautonomia. Because the more people who know; the less people will suffer through years of mis-diagnosis and lack of understanding. If knowledge of this spreads through the community (both the medical community and the general community) there will be greater understanding towards people who suffer from it. It’s one of my missions. This guy, like many docto
  4. Hi Clair, I suspect it is the high temperature of the water. You were in for half an hour which is a long time in that kind of heat. I know I would feel all those things you mention if I spent even half that length of time in water that hot. My body just can't thermoregulate effectively and it takes a very long time to get over it. Do you have a similar experience after a bath? I suspect it is about how your body handles heat. It is so frustrating when well meaning people suggest things to help that trigger other issues. Hope you find another solution. R
  5. Hi Pandygirl, I am new to this site, but recently I saw your post and your 'name'... I have just been diagnosed with pandysautonomia too. I''m also a Mum and live in New Zealand. Would love to swap notes with you!

  6. Hi Valerie, I'd like to know more about licorice root too. Does anyone know if you can you take it with the other meds or is it instead of? thanks, Rachel
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