joyagh Posted February 1, 2013 Report Share Posted February 1, 2013 why does the NINDS have the primary symptoms of POTS as lightheadedness and FAINTING? So much other research states that less than 30% of POTS patients faint. This makes dr's think that if you don't faint you are ok.http://www.ninds.nih.gov/disorders/postural_tachycardia_syndrome/postural_tachycardia_syndrome.htm Quote Link to comment Share on other sites More sharing options...
boymommy3 Posted February 1, 2013 Report Share Posted February 1, 2013 I was wondering the same thing! I just saw that a few days ago! Quote Link to comment Share on other sites More sharing options...
bebe127 Posted February 1, 2013 Report Share Posted February 1, 2013 I have wondered this for years. I even had one EP tell me that since I don't faint, I have a mild case of POTS, and this was supposedly a specialist in POTS (at the end of that visit I was in tears as he was telling me that I probably needed to seek out therapy)! I now try to take articles into the dr. so that I can refer to them if need be without trying to step on any toes while I'm at it. I wish dr.s would get on this site (or any other dys sites) where they could possibly educate themselves. I think by now most of us ought to be able to get grandfathered in as MD's The only explanation I have is pure ignorance, and it's such a shame as there are so many of us looking to these dr.s for answers, and most of the time we just leave with more questions. Quote Link to comment Share on other sites More sharing options...
RubyLane Posted February 1, 2013 Report Share Posted February 1, 2013 I have only fainted a couple of times but have been pretty much house-bound for over a year. So yeah, that obviously doens't mean anything. Quote Link to comment Share on other sites More sharing options...
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