Cfs People And Maybe Others Will Appreciate

[HopeSprings]

Just one more post, then I'll be quiet, I promise! I saw this new Eletrophysiologist and he wasn't totally POTS knowledgable, but had a pretty good understanding of the syndrome - he used all the buzz words without being prompted by me.. venous pooling, adrenergic, sympathetic nervous system etc. Anyway, I also told him about my CFS diagnosis, although I was hesitant. He brought it up later in our conversation and said, 'you know, we (Doctors) used to dismiss the diagnosis of Chronic Fatigue Syndrome, but it is real. The symptoms you experience - OI, fatigue, dizziness are all classic for the illness.' I was pretty shocked to hear him say this and was so happy! This Doctor is totally mainstream (the kind you can imagine dismissing CFS), an obviously former non-believer who has changed his thinking and now believes. Yes, this illness is real.

[Guest Alex]

Naomi,

I just found these articles today - researchers definitely see relationships between CFS and POTS.

http://www.ncbi.nlm....les/PMC3203411/

http://www.clinsci.o...121/1180121.pdf

http://qjmed.oxfordj...101/12/961.long

http://www.ncbi.nlm....76-5918-6-2.pdf

http://ebm.rsmjourna...7.full.pdf html

Glad to hear you found a dr that listens and understands.

Best,

Alex

[k&ajsmom]

That is great you found this doctor, and wonderful he is intelligent enough to question previous conclusions. I remember the first doctor to tell me I had cfs. I asked what is that? and he responded with " well.....its what we tell people that are tired and dont feel good and we cant figure out why...just like fibromyalgia, its called a bucket diagnosis we doctors have, we just throw it all in there".......jaw dropped, and never went back to him again.

[peregrine]

Awesome! It's amazing to see someone who has kept up on the literature and modified their thoughts and practice accordingly. Hooray!

[lifeless]

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