Mytwogirlsrox Posted June 29, 2012 Report Share Posted June 29, 2012 I just got the information from his nurse for studies to participate in... Has Anyone else volunteered for him? Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted June 29, 2012 Report Share Posted June 29, 2012 Yes - I did. Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted June 29, 2012 Author Report Share Posted June 29, 2012 How did it go? What did you think? Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted June 29, 2012 Report Share Posted June 29, 2012 Dr. Stewart and his colleagues are very nice and it was refreshing to have a conversation about this illness with people who really understand. I participated in 2007 - I can't believe it's been 5 years. I'm guessing whatever studies they're doing now are different than when I was there. I had a little difficulty with some parts, but they won't push you if you're having problems. I think it's worthwhile to participate and maybe you'll get to ask questions you have and you never know, you might learn something about your illness in the process. If you have specific questions, feel free to pm me. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 4, 2012 Report Share Posted July 4, 2012 no but i would in a heart beat. Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted July 4, 2012 Author Report Share Posted July 4, 2012 Rama, I want to but after reading about what they wanna do, I'm a little scared!!! Quote Link to comment Share on other sites More sharing options...
Libby Posted July 4, 2012 Report Share Posted July 4, 2012 What do they want to do? Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 4, 2012 Report Share Posted July 4, 2012 You'd struggle to get comprehensive analysis anywhere else. i think all they do is microvascular examinations and transdobbler measurements of cerebral blood flow - is it something more invassive? I read once that one study group wanted to take a biospy of the heart musckle in POTS. Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted July 4, 2012 Author Report Share Posted July 4, 2012 Something like laying on a tilt table for 6 hours for 4 days while they do emg, dopplers etc while injecting different stuff in your legs .... Eeeek! Quote Link to comment Share on other sites More sharing options...
lexcyn Posted July 4, 2012 Report Share Posted July 4, 2012 where can i get info on this? i have trying to find a study that will accept me for awhile Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted July 4, 2012 Author Report Share Posted July 4, 2012 Lex kinthink I sent you the contact info Quote Link to comment Share on other sites More sharing options...
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