avais1 Posted March 9, 2005 Report Share Posted March 9, 2005 Hi all!Since I share so many of my gripes with you all, how about a success story for a change of pace? We took our trip last week. We went to Ely, MN for a long weekend (4 days). Let me paint the scene:1) Ely is very remote, and has only a tiny hospital (SOL in case of POTS, basically)2) We were staying 15 minutes south of Ely3) We were staying in a remote cabin4) Our car got stuck in the snow, so we had to park it UPHILL ABOUT 2 BLOCKS AWAY!!So, there I was, in the middle of nowhere, with no real medical help available in case of POTS, I HAD to walk a 2 block steep uphill climb that was covered in 2 feet of snow, just to get to the **** car, whine whine . Needless to say, this all put me on edge. I snapped at my fiance, and told him I hoped he was prepared to carry me to and from the car if my POTS kicked in. Now for the kicker: I sat in the cabin, and thought to myself, "You can either sit here and worry yourself into a POTS/PANIC hole, or you can get out and enjoy the scenery". I decided if the attacks come - so be it...I will not live my life contantly being afraid of "What If..." I grabbed my stuff, and I went SNOWSHOEING!!! I MADE IT A MILE!!! My heart was pounding, but in a good way. I had made it to the point that I didn't care if it did. I was going to have SOME FUN!! The next day, I did it again AND BY MYSELF!! Granted, I didn't go as far as the day before, I was still tired and my fiance wasn't with me. But, nevertheless, I DID IT!!!! I had only one POTS attack on the first night, but I kept my head together, and it was over in 30 minutes. I was getting ready to reach for the Xanax, but then it stopped. I guess just knowing that I had the Xanax there, just in case, really helped me. I DIDN'T EVEN HAVE TO TAKE ONE!! For one weekend, I got to remember what it was like to be a "normal" person. It was a gift, I thank God for it. Keep the faith, all of you. You may think you may not ever feel "normal" again, like I did. Any maybe you won't, by our "old" definition of ourselves. I used to be able to snowshoe for miles. But I'll take this victory - and that is exactly what it is. Yes, my body can't do what it used to do, but it is still a good body in its own way. The fact that we are all still here, still going, still fighting on, in spite of the odds against us - that is a true victory of the human spirit. And that, my friends, can NEVER be taken from us; not by person, place, experience, or even Dysautonomia. Bless you! Quote Link to comment Share on other sites More sharing options...
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