jangle Posted March 22, 2012 Author Report Share Posted March 22, 2012 Ya my blood pressure is around 110/65 on Losartan 25 mg.Today I've been pretty much 95% improved throughout the majority of it. Whatever is left of my POTS is a barely noticeable sensation in my head. Quote Link to comment Share on other sites More sharing options...
issie Posted March 22, 2012 Report Share Posted March 22, 2012 YAYYYYY!!!!!!! So happy for you Jangle.Issie Quote Link to comment Share on other sites More sharing options...
corina Posted March 22, 2012 Report Share Posted March 22, 2012 wow, amazing!!! really happy for you Jangle!!! Quote Link to comment Share on other sites More sharing options...
E246 Posted March 22, 2012 Report Share Posted March 22, 2012 Brilliant. Are you still exercising as well? Quote Link to comment Share on other sites More sharing options...
jangle Posted March 22, 2012 Author Report Share Posted March 22, 2012 Thanks Issie and Corina.Emma yes, I'm up to 6 miles 4 times a week.I think what's left of my POTS is eye-ear imbalance. It's not really lightheaded it's more of just an "off balance" feeling. I'm trying to walk with my eyes closed and my eyes moving to try to get my brain to recalibrate its balance to using my feet + ears rather than my eyes for balance. Quote Link to comment Share on other sites More sharing options...
issie Posted March 22, 2012 Report Share Posted March 22, 2012 I think what's left of my POTS is eye-ear imbalance. It's not really lightheaded it's more of just an "off balance" feeling. I'm trying to walk with my eyes closed and my eyes moving to try to get my brain to recalibrate its balance to using my feet + ears rather than my eyes for balance.Jangle, I don't know if it would help or not - before I had my POTS DX - they thought I was having vertigo and had me lie on the bed and sort of swing/move my head side to side like rolling with my eyes open - it will really bring on dizziness - but, it's supposed to help reset that imbalance thing. I can't say for sure it helped because I still have the dizziness - but, it's nothing now like it was then. So, maybe it helped. Just be careful because you might barf - when you do it - cause it will make you really dizzy and nauseous. Thus, the reason for lying down.Issie Quote Link to comment Share on other sites More sharing options...
kayjay Posted March 23, 2012 Report Share Posted March 23, 2012 jangle, I think your message box might be full. I just tried to send you a pm and it wouldn't go though. Quote Link to comment Share on other sites More sharing options...
jangle Posted March 23, 2012 Author Report Share Posted March 23, 2012 Oh sorry kayjay I cleared some up. Quote Link to comment Share on other sites More sharing options...
jenglynn Posted March 23, 2012 Report Share Posted March 23, 2012 Jangle!!!!I am SO happy for you. I have to be honest- I don't if it is from my concussions or POTS brain- or both- but as I was skimming this whole post my poor brain was not comprehending most of it... EXCEPT: "Today I've been pretty much 95% improved throughout the majority of it." I cannot TELL you how happy that made me and just made my WHOLE DAY!!!!!I am so proud of you for not giving up, trying new things and also taking the time to be such a positive motivator in this forum- who always has a friendly, kind comment and lots of encouragement and compassion!!! You go enjoy this day 95% free of symptoms and LIVE life!!!!!!!! Jen Quote Link to comment Share on other sites More sharing options...
bellgirl Posted March 25, 2012 Report Share Posted March 25, 2012 This is great news Jangle...it works well for me, too!! Hope your "Off balance" feeling improves. I still have this problem, and I have just accepted it as a part of the dysautonomia that will always be with me...it's amazing though, how our bodies do learn to compensate. I am not as nauseated as I used to be either, because of the dizziness, which is much improved. I'm still not good in the car, though. I actually wear the motion sick arm bands (acupressure to the wrist), though, and I believe they actually help me, if I am in the car or on the elliptical!! Wow, I'm impressed with your exercise regimen, too!! Quote Link to comment Share on other sites More sharing options...
chipper Posted March 27, 2012 Report Share Posted March 27, 2012 That is so exciting!! Quote Link to comment Share on other sites More sharing options...
Lenna Posted March 27, 2012 Report Share Posted March 27, 2012 The good news is that my son has been on Losartan for over a year now, and the benefits have not waned. Quote Link to comment Share on other sites More sharing options...
jangle Posted March 27, 2012 Author Report Share Posted March 27, 2012 Lenna did your son have a dose dependent response? Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 27, 2012 Report Share Posted March 27, 2012 I'd expect it would only help those with low no through intense vasoconstriction or other mechanisms. Quote Link to comment Share on other sites More sharing options...
Lenna Posted March 27, 2012 Report Share Posted March 27, 2012 Jangle, Danny experimented with a dose a little bit at the beginning. He tried splitting it between morning and night, for example. But the best response has been from 25mg. in the morning, along with .5 mg. Florinef. Quote Link to comment Share on other sites More sharing options...
Darlene Posted March 27, 2012 Report Share Posted March 27, 2012 could i use this for tachycardia? Quote Link to comment Share on other sites More sharing options...
bellgirl Posted March 27, 2012 Report Share Posted March 27, 2012 No, it doesn't help with tachycardia. Quote Link to comment Share on other sites More sharing options...
Lenna Posted March 27, 2012 Report Share Posted March 27, 2012 I agree...it does not help with tachycardia. Also, I just want to stress that this medication is helpful only for people who are vasoconstricted. The majority of people with POTS are vasodilated, I believe, and Losartan should not be taken by anyone who is vasodilated. I guarantee that it would make you worse! Quote Link to comment Share on other sites More sharing options...
abbyw Posted March 27, 2012 Report Share Posted March 27, 2012 I think what's left of my POTS is eye-ear imbalance. It's not really lightheaded it's more of just an "off balance" feeling. I'm trying to walk with my eyes closed and my eyes moving to try to get my brain to recalibrate its balance to using my feet + ears rather than my eyes for balance.Jangle, I don't know if it would help or not - before I had my POTS DX - they thought I was having vertigo and had me lie on the bed and sort of swing/move my head side to side like rolling with my eyes open - it will really bring on dizziness - but, it's supposed to help reset that imbalance thing. I can't say for sure it helped because I still have the dizziness - but, it's nothing now like it was then. So, maybe it helped. Just be careful because you might barf - when you do it - cause it will make you really dizzy and nauseous. Thus, the reasonfor lying down.IssieIssie - I think that they were trying to treat you for BBPV (if I am remembering the term correctly). My Dr. tried this maneuver on me when I first complained of dizziness. It is a problem where tiny particles in the inner ear are somehow "loose". Doing this maneuver supposedly jiggles them back into place. It obviously did nothing for me, as that was not my problem. But if your dizziness is coming from an inner ear problem, people report that it helps. You can do it on yourself - you can look up BBPV on youtube.Glad to hear you are doing better, Jangle! I hope it continues. If I don't have pooling and I get very cold, would that imply vasoconstricted?Abby Quote Link to comment Share on other sites More sharing options...
Lenna Posted March 27, 2012 Report Share Posted March 27, 2012 Rama,My son who is taking Losartan has been reading this thread and has a question for you: Where did you read that Losartan boosts Aldosterone responses in people with POTS who have elevated Angiotenin II ? He'd like to read that study. Thanks. Quote Link to comment Share on other sites More sharing options...
Lenna Posted March 27, 2012 Report Share Posted March 27, 2012 If I don't have pooling and I get very cold, would that imply vasoconstricted?AbbyI don't know, Abby. We suspected that Danny was vasoconstricted because vasoconstricting drugs like Midodrine, Mestinon and Adderall made him much more symptomatic. Then he participated in an Nitric Oxide research study, which showed that he was deficient. The logical conclusion to that is that he is vasoconstricted. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 28, 2012 Report Share Posted March 28, 2012 I think it was the original Losartan study, although the main effects are probably mediated through nitric oxide. But the idea was to curb ang II reception which was theorised would resolve blood volume abnormalities.Mestinon doesnt seem to vasoconstrict for me. Seems to just boost parasympathetic activity in my case. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted March 28, 2012 Report Share Posted March 28, 2012 Rama, if the Mestinon doesn't end up working for you, my neurologist is trying to get Provigil authorized for me for fatigue. He gives it to his MS patients, and my ANS doctor also has prescribed it before for dysautonomia patients, so I'll let you know how it goes...if it gets authorized by my insurance company, that is! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 29, 2012 Report Share Posted March 29, 2012 Mestinon works fine for me. it does nothing for fatigue though - only improves presyncope for me. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted March 29, 2012 Report Share Posted March 29, 2012 I misunderstood...thought you were using it for fatigue; never heard of it being used for presyncope. Isn't it the med used for MG? Learn something new every day Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.