comfortzone Posted February 19, 2012 Report Share Posted February 19, 2012 http://www.amazon.com/POTS-Together-Stand-Riding-Dysautonomia/dp/1466371501/ref=pd_sim_b_4Have you guys read this book? Was curious who did and what you thought of it - it is fairly well reviewed at Amazon...Thanks! Quote Link to comment Share on other sites More sharing options...
puppylove Posted February 19, 2012 Report Share Posted February 19, 2012 I own it and have read most of it. It's very informative and very long. There's any thing you can think of about possible treatments and other things relating to POTS. The only thing is the first edition was not edited so there are a lot of mistakes but that's not a big deal to me. Quote Link to comment Share on other sites More sharing options...
Chaos Posted February 19, 2012 Report Share Posted February 19, 2012 There was another post about this a couple of months ago. I believe people thought it was worthwhile. You might want to search the old posts for it. Quote Link to comment Share on other sites More sharing options...
akavella Posted February 19, 2012 Report Share Posted February 19, 2012 interesting might check it out. Quote Link to comment Share on other sites More sharing options...
comfortzone Posted February 19, 2012 Author Report Share Posted February 19, 2012 Thanks Chaos! I did that very thing - "together we stand" and with the word Pots and I kept coming up dry - with as bright a group as we have here I was sure someone in Dinet must have either written it or had read it... That being said - we always have new members joining the ranks - and I figured I'd give a shout out about it... nothing like the power of a good book to support you in the fray! Does anyone remember if it's kind of "solely" for the POTs people - or if it would also help other odd blood pressure / orthostatic issues of intolerance? I'm guessing it would help anyone - yet if it's specifically for people with heart rates over 130 (unmedicated) - from slight movements - well that's not me & I might get frustrated with that...Thanks - I'll also try a few other phrases to snag that old thread - thanx C! Quote Link to comment Share on other sites More sharing options...
akavella Posted February 19, 2012 Report Share Posted February 19, 2012 okay i couldnt help myself...so i just bought it on amazon. ill let you know what i think of it. Quote Link to comment Share on other sites More sharing options...
lgtaylor100 Posted February 19, 2012 Report Share Posted February 19, 2012 Good book; mostly geared toward adolescents and young adults Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted February 19, 2012 Report Share Posted February 19, 2012 Yes, I agree with Lynn - a lot was geared to younger POTs people or their caregivers, but there was plenty of info in there for us old folks too. I'm just so happy there IS a POTS book and I totally support this author and any other that writes about our condition. Quote Link to comment Share on other sites More sharing options...
comfortzone Posted February 19, 2012 Author Report Share Posted February 19, 2012 Did you know that Dr. Blair Grubb also is a writer? I was reading one of those Chicken Soup for the Soul books and a really neat story in the book was written by him! Not about POTs but about an experience that highlights faith in a very cool set of circumstances that befuddled him early in his career as a resident I believe.... Quote Link to comment Share on other sites More sharing options...
Chaos Posted February 19, 2012 Report Share Posted February 19, 2012 Nowwhat- Very cool. Thanks for letting us know about the Blair Grubb story in Chicken Soup for the Soul. I've had that book on my shelf for 4 years and now maybe I'll actually read it. LOL Quote Link to comment Share on other sites More sharing options...
Chaos Posted February 19, 2012 Report Share Posted February 19, 2012 http://forums.dinet....__fromsearch__1Sorry it's not coming up as a link but if you copy and paste it into your search box it should bring up the old post about the book. Might give you further input.Oh. It did come up as a link after I posted it. LOL Quote Link to comment Share on other sites More sharing options...
comfortzone Posted February 20, 2012 Author Report Share Posted February 20, 2012 The particular book that his story is in was a Chicken Soup for the Catholic Soul - and interestingly he is Jewish :-) There's too many Chicken Soup books to count these days - for kids to teens to who knows! Theres even a board game that I picked up at Goodwill that's Chicken Soup for the Soul lol Quote Link to comment Share on other sites More sharing options...
roxie Posted March 11, 2012 Report Share Posted March 11, 2012 I just finished this book and thought it was good.There is a large part of it geared at teens orparents of teens BUT you don't miss anything of you skip those parts! I think the second of have the book put together by Dr Svetlana Blitshtyn is the best. She touches on the mechanisms but what I liked the most is when she talked about coping. Dr Blitshtyn seems to have a good understanding of our struggles and have some great advice on coping, at least I think so Quote Link to comment Share on other sites More sharing options...
FarmerAmy Posted March 12, 2012 Report Share Posted March 12, 2012 I have read it and thought it was good (I am 40). There are a lot of typos and I feel like that makes it feel very unprofessional. But it was nice to have a book to read about POTS. She gathered tons of info into one place. There were no earth-shattering miracle cures in the book, but I am glad I read it. Quote Link to comment Share on other sites More sharing options...
roxie Posted March 12, 2012 Report Share Posted March 12, 2012 Yes, there are a lot of typos, mostly in the first half. I think that's because it is a self-published book and you don't have access to the same editors. Quote Link to comment Share on other sites More sharing options...
Monstrosity Posted April 2, 2012 Report Share Posted April 2, 2012 I read it a few months back. All in all it was worth the read. Quote Link to comment Share on other sites More sharing options...
kjmom Posted April 2, 2012 Report Share Posted April 2, 2012 Thanks for the link! I just got it for my Kindle. Just read a few chapters and it seems unite helpful for someone like me with a POTS child. There's great info about dealing with school. Quote Link to comment Share on other sites More sharing options...
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