Michelle Sawicki Posted February 11, 2005 Report Share Posted February 11, 2005 Hit ice and snow on drive up, but quick trip Sunday. Started right in Monday with a parade of appointments and tests. Had to wait 2 hours for first dr. appt--great start!--but then spent 2 hours with him. So, I did get my money's worth! Then test after test after test.blood and urine tests the dreaded tilt table test, checking heart rate and blood pressure in response to tilt deep breathing and HR/BP response Valsalva manuever (holding pressure while blowing steady) for HR/BP responseTuesday, guess what?! More tests!More blood and urine tests, inlcuding 24 hr urine catch...yuck! My dearest husband even toted around the container for me... what we do for love! MRI Xrays urology exam and urodynamic study (another yucky one) And today I saw one of the urology specialists. Good visit and more tests ordered, of course.Tomorrow... and you guessed it, more tests. Yes, for those I've told about it, it's the orange powder one under a heat lamp. Gynecology consult/exam. Well, and probably more tests added by the end of the day. And tests on the schedule already for Thursday, including esophagus xrays (videofluroscopy), back to urology doc... and so on. Final test on the schedule right not is March 2--although trying to get that one moved up--for psych well-being test. It's supposedly routine out of the neurology dept appts, but Scott says it's long overdue! Funny guy. And he was the one carrying around my specimens. I guess it's a way to measure stress/anxiety. Yeah, right.Overall, this is an amazing place. Everything, everyone works very smoothly together. Everyone very helpful. Shuttles are definately the way to go. Don't try to drive and find parking. There's a subway below all the buildings that connects them all... lots of shopping, places to eat, and certainly, lots of interesting people! They really keep you hopping on schedules. We've had to skip eating or go cram down a bite between appointments. Then sometimes you feel like, "hurry up and wait, hurry up and wait." Here's an interesting event for Scott. He saw Dr. Ruth Westheimer in the waiting room at xrays. They called out her name and everyone looked up. No, he didn't ask her for tips.Have talked to some interesting folks in the waiting rooms. See sad situations. Reminds us there are bigger problems than our own. Really sad to see the kids. Ok, that's it for my first entry. No big news, yet. Still evaluating, testing. Feel pretty wiped out, but glad to be here and hopefully, getting to the bottom of this--literally. All for now. Thank you for your prayers... they keep me strong!Ginger and Scott Quote Link to comment Share on other sites More sharing options...
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