Dizzysillyak Posted December 21, 2011 Report Share Posted December 21, 2011 I've been mostly couchbound for 4 months now due to an increase in oh, pots and pem. My digestionslowed down considerably in september so I thought my celiac was back.I had a metamatrix stool test back in oct and just found out that I have h pylori (5.6E + 005 ref range <= 1.0 + 005) and parasites ( endolimax nana and unknown non human). I'm to start treatment for the h pylori asap then we'll treat the parasites. I had beenfeeling pretty good and thought this flare was either from celiac or me/cfs/dysautonomia so I was shocked to see this. My gluten antibodies (10.5 ref range <=21.4 - but it's labeled high) were up too but not horribly. Cross contamination is nailing me. I rarelyeat a gf processed food but I was eating nuts and seeds regularly. I'm low on bifo, butyrate ane elastase too. Otherwise my gut bacteria looks good. Most of my good bacteria levels are ok. And there was no candida or fungus. YAY ! Sadly, the antibiotics for h pylori are going to mess this up. I haven't looked at the rest of this test yet but those are the most obvious readings. Looking back,I have had stomach pain but thought it was from celiac .. Surprise !I also had my aldosterone and renin tested and those came back normal. My cortisol was 13 tho.This was a fasting blood test and I had pre-seizure activity immediately afterwards so I'm not sure if that affected my cortisol. I had to take klonopin to stop the seizure so it wasn't just myusual hypoglycemia.I'm tired so I'll have to come back to add the rest. Tc .. D Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted December 21, 2011 Report Share Posted December 21, 2011 wil be interesting to see how they help though. all the best. Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted December 21, 2011 Author Report Share Posted December 21, 2011 Thanks ram. From what I was told this could make me worse before I get better. I'm debating waiting until my company leaves to start this. Quote Link to comment Share on other sites More sharing options...
JWPotsMom Posted December 21, 2011 Report Share Posted December 21, 2011 Just a heads-upHave you had any conventional testing done to verify the results?My DS had some positive results from Metametrix, but multiple conventional testings failed to find the same results. I wanted it to be true, because then we had something to treat, but it wasn't. He did start feeling better (for about 5 months he was fine)--which theoretically shouldn't have happened if the Metametrix test had been correct.I hope you feel better very soon!! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted December 21, 2011 Report Share Posted December 21, 2011 I have had gastritis and ulcers on most of my upper scopes, yet always tested negative on h. pylori. I always wondered if they didn't quite test in the right spot and I actually DO have h. pylori. It sure would answer all the gastritis and bloating. Even though I've heard the treatment is not a walk in the park, I would like to try it to see if things would get better. I wrote something a couple of years ago about h. pylori that could cause/affect orthostatic issues. I'll have to dig it up and link it. Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted December 22, 2011 Author Report Share Posted December 22, 2011 Thanks .. I hadn't thought of that. But .. My doctor who ordered this test is an integrative doctor,md + natural, soooo I trust her opinion. She's clearly not biased in either direction so I'm assumingshe thought of that. I've been seeing her for 3 - 4 years now and she's been right most, if notall, of the time. Btw. I know the traditional gluten antibody testing via blood was changed a few years ago to make it lesssensitive. A freind of mine posted extensively about this when his wife's numbers suddenlylooked great for no reason .. I've heard from others that stool testing is more accurate for digestive issues but as a layman I don't really know. I sure hope this helps ...I'm glad to hear that your son is doing better .. That's all that matters. Tc .. DPs. I hope I didn't sound ungrateful .. I really appreciate any help I can get and will keep this in mind.Thanks again .. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted December 22, 2011 Report Share Posted December 22, 2011 Here's the link to the h. pylori stuff I found last year:http://forums.dinet.org/index.php?/topic/15746-possible-bacteria-at-root/page__hl__ h. pylori Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted December 22, 2011 Author Report Share Posted December 22, 2011 Hi sue,Thanks, I'd love to see that. My previous tests, endoscopy and breath, years ago, for h pylori were negative. My docwas saying that we can catch this from anywhere. In fact, when she ordered the breath teston me years ago, it was because she was seeing so much of it in her practice.Between celiac disease, dysbiosis, candida and now h pylori and parasites, my gut can'tcatch a break. I wonder if someone who was diagnosed and treated for h pylori is a carrier ? If so, I have anidea where I got this ... Tc .. D Quote Link to comment Share on other sites More sharing options...
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