Clairefmartin Posted November 14, 2011 Report Share Posted November 14, 2011 Hi there,I joined them meet others program, but am confused as to how it works. So I thought I'd post here, hope that's ok. I was wondering if there are any dysautonomia/POTS folks in my area??? If so I'd love to connect, even if its just online. Its nice to know there are others here locally and be able to share info on local stuff. Or if someone can tell me how the meet others thing works I'm all ears All I received was an email saying I'd joined.Thanks! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted November 14, 2011 Report Share Posted November 14, 2011 I am about 2 hrs away from you...I don't know the status of the meet others program. Hopefully someone can respond to that who does! Quote Link to comment Share on other sites More sharing options...
Clairefmartin Posted November 15, 2011 Author Report Share Posted November 15, 2011 Cool! Do you have others in your area? Do you guys have meet ups or groups? Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted November 15, 2011 Report Share Posted November 15, 2011 I don't know any other patients nearby. My specialist in Salisbury tells me there are a lot of us on Delmarva however... Quote Link to comment Share on other sites More sharing options...
Rachel Posted November 15, 2011 Report Share Posted November 15, 2011 The Meet Others program is a bit confusing at the moment. We're working on making it better and more user friendly.Here is how it works currently: When you join the Meet Others program your information is sent to those who are already on the list. If someone nearby (who was already on the list) wants to contact you, then they have to make the first move. When new people join the Meet Others program in your area, you will receive their contact information via email. The "old" members receive the information of the "new" member, and it is up to the old members to make contact.In the past we used to send out an updated list to both new and old members every time someone in the area joined. That led to unwanted contacts, so in order to protect our members we had to change the system a little.I really hope to be able to revamp this program next year so that it is both user friendly and protects our members.Rachel Quote Link to comment Share on other sites More sharing options...
puppylove Posted December 18, 2011 Report Share Posted December 18, 2011 I'm in Fairfax, Va. I'm not sure how far away that is... Quote Link to comment Share on other sites More sharing options...
potsgirl Posted December 18, 2011 Report Share Posted December 18, 2011 We have several people in the Tucson/Phoenix area, and we will be meeting on Jan 6th. I'm very excited about this! It appears that there will be around 6-8 of us meeting at a local deli.Cfmartin~ I hope you find some others in your area that you can get to know better. Good luck! Quote Link to comment Share on other sites More sharing options...
corina Posted December 18, 2011 Report Share Posted December 18, 2011 ohhhhh potsgirls, that is SO cool!!!!! wish i could join you all! we have about 6 pots patients here in the netherlands and i met a few of them (and have internet contact with the rest of them) but i would love a get together with all of us as well! wishing you all lots of fun on your meeting! Quote Link to comment Share on other sites More sharing options...
Clairefmartin Posted December 20, 2011 Author Report Share Posted December 20, 2011 I'm in Fairfax, Va. I'm not sure how far away that is...I'm from Farfax! My family still lives up there. We are near Virginia Beach, about 3 hours southeast. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted December 20, 2011 Report Share Posted December 20, 2011 I grew up in Arlington, VA. And still have family there. Quote Link to comment Share on other sites More sharing options...
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