Guest maia Posted September 17, 2011 Report Share Posted September 17, 2011 When im not otherwise sick my pulse usually is 70 reclining (lower when sleeping) and about 120+ standing. When im not feeling well-a cold, infection, etc. it can go from 70 to 180 within a couple minutes of standing. Is this generally how other peoples pulse rates respond in POTS? Quote Link to comment Share on other sites More sharing options...
brethor9 Posted September 17, 2011 Report Share Posted September 17, 2011 Hi MaiaYes that is very similar to my symptoms....my heartrate is always way worse when I am sick and the swings are much more drasticBren Quote Link to comment Share on other sites More sharing options...
firewatcher Posted September 17, 2011 Report Share Posted September 17, 2011 I swing from 50's to 120's when getting up in the morning. It can go as high as 140's + if I am sick. That is just changing position, not moving around. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 18, 2011 Report Share Posted September 18, 2011 70's laying down and typically up to 120's getting up, but can get as high as 150's standing. My heart definitely feels worse when I'm sick - I don't think pulse rate is actually higher, but it feels like it. Quote Link to comment Share on other sites More sharing options...
louloutinks Posted September 18, 2011 Report Share Posted September 18, 2011 My rest pulse varies but this morning pulse went from 83 to 149 and yesterday it went from 66 to 125. Not sure what it is like when I am sick as I usually feel too rough to take note. I know I fell asleep with a HR watch on and when I woke in the morning it shot up to 180 when I jolted over to turn the alarm off - probably the shock of the seriously LOUD alarm going off -it's enough to give anyone a fright!! Usually my pulse shoots up straight away, but there have been occasions when it has gradually got faster and faster over a couple of minutes. My worst is walking up stairs in the morning with my coffee - 14 steps and I get serious tachy and tough to breathe. Does any one else get this with stairs and if so, why is this? Later in the day it is not too bad going up the stairs. Quote Link to comment Share on other sites More sharing options...
Guest maia Posted September 18, 2011 Report Share Posted September 18, 2011 Tinks, i have the same issue with stairs-tachy and short of breath. usually if im feeling well it is better in the afternoon also, though all bets are off if im sick, its hot or humid, ive eaten carbs, or just not feeling well. are the heart rate watches expensive? im curious to see what mine jumps to when i get up. i know it jumps but waking and getting up is difficult enough to try and get a pulse too, lol... Quote Link to comment Share on other sites More sharing options...
Guest maia Posted September 18, 2011 Report Share Posted September 18, 2011 missed this... why? from what ive read, POTS has its own little rhythm-not sure why yet-and it is generally worse in the mornings and better in the evenings. Some say it is because of prolonged resting vs being more up and about others dont say why... Quote Link to comment Share on other sites More sharing options...
louloutinks Posted September 19, 2011 Report Share Posted September 19, 2011 Very odd that in the mornings, stairs cripple me - I am so short of breathe, get pounding head and awful tachy. But in the afternoon/evening I seem to cope better as I do not get so short of breathe - made me start thinking I am just unfit but I still cannot understand why pots has its own rhythm - surely if the signals from the brain are not getting through, then this would happen all the time. Saying that, I get tachy every time I stand so maybe my body finds things harder to deal with upon waking?? Quote Link to comment Share on other sites More sharing options...
kayjay Posted September 19, 2011 Report Share Posted September 19, 2011 Short answer "yes". my heart rate will go from 50-60 to 170-180 just standing. However beta blockers for me have decreased the highs and unless I am exerting myself or standing too long it now usually stays under 120. I know it is scary but try not to worry... this is POTS and even in "normal" people your heart can increase to almost 200 depending on your age with exercise.My doctor told me not to worry about it unless it wont come back down with rest. It always does . Quote Link to comment Share on other sites More sharing options...
cmreber Posted September 19, 2011 Report Share Posted September 19, 2011 When I first developed POTS (& before I was diagnosed or was put on beta blockers) my resting heart rate was anywhere from 80-110. When I got up normally it would go anywhere from 130s to 170s and it would always be about 160-190s in the shower. My doctors put me on a halter monitor for 48 hrs and once they saw the results they were sure I had an extra electrical pathway in my heart & thought I would have to do an ablation procedure to correct the problem. Fortunately the specialist I went to see was able to diagnose me with POTS since ablation in POTS patients is actually a very bad idea!Once I was diagnosed and put on the beta blockers, everything got a lot better. It depends on the day, but resting I now tend to be in the 70s and standing up I stay between 80s and 140s depending on what I'm doing and how long I have been standing etc. I can also now take a shower and stay in the 120s to 140slo and I no longer have to have a chair in there! Quote Link to comment Share on other sites More sharing options...
Guest maia Posted September 20, 2011 Report Share Posted September 20, 2011 wow cm reber. so glad that the pots was found before an ablation! about 10 years ago when i had what i now think was my first episode of pots it was suggested to me that i needed an ablation also. i refused and got mixed up with a bad doc and a bad diagnosis, but thankfully i never had the ablation either, Thank you all for the comments, its very interesting and reassuring to know that we all seem to have the same weird swings and are affected by so many of the same things also! Quote Link to comment Share on other sites More sharing options...
GingerA Posted September 20, 2011 Report Share Posted September 20, 2011 You are lucky to have such a smart doc CMReber. After an attack of trachy in 2007 (my rate at this attack was 220 and this was for almost an hour) the doctor in the ER stopped and restarted my heart. (It is the most painful thing I have ever experienced and I have had three kids). Then sent me to a specialist who did an ablasion. This was before I was diagnosed with POTS and I am told it is a contributing factor as to why my POTS is harder to manage now. Quote Link to comment Share on other sites More sharing options...
sandymbme Posted September 20, 2011 Report Share Posted September 20, 2011 My swings also depend on how I am doing overall. A good day will see me with about a 70 or so sitting HR, and standing of around 100. Have been really ill this week, had bad celiac attack, which always causes my POTS and EDS to go nuts as well. My HR at 3:30pm (which was the soonest I could entertain the idea of getting out of bed) was 126 sitting, but I had taken it right after I had just passed out. Bad day today/yesterday, lots of syncope and near syncope episodes. I didn't dare standing, was home alone. Usually when it is that bad it is about 70 beats per minute higher standing.Sandy Quote Link to comment Share on other sites More sharing options...
cmreber Posted September 20, 2011 Report Share Posted September 20, 2011 Maia, it sounds like you lucked out too not getting the ablation, and I am so thankful that I found a Dr who could give me answers as quickly as I did, especially after reading some of the stories on here!GingerA, I am so sorry to hear what you have gone through, and I find it so crazy that more doctors and people in the medical field are completely unaware of this life altering disorder! I honestly wonder what can be done to raise more awareness so that things like your situation do not happen needlessly because of doctors having a severe lack of information when it comes to POTS and other related issues. I have two close friends (one is an orthopedic surgeon & the other a PA) and it was truly surprising that I looked in their most current medical journal and it didn't even MENTION POTS or dysautonomia! My nurse practitioner that I see on a regular basis had never heard of it before me but I was happy to hear her say that at her last conference, she actually mentioned it to the other attendees Maybe, slowly, with more Drs like her the medical field might at least start moving in the right direction when it comes to POTS! Quote Link to comment Share on other sites More sharing options...
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