beala Posted January 9, 2005 Report Share Posted January 9, 2005 Our son's new Cardio suggested we try sudafed 30 mg one a day, so far my son has felt more dizzy and thought he was going to pass out. I know we have only giveen it two days but man when you feel like that after taking it. I would like to stop until we talk to heer again. He does take 100 zoloft and procrit shots. She thought the 100 zoloft was high and thought about decreasing this as a 2nd plan if the sudafed wasn't helping with the brain fog. Has anyone had luck with sudafed ?? Quote Link to comment Share on other sites More sharing options...
Merrill Posted January 9, 2005 Report Share Posted January 9, 2005 The doctor prescribed sudafed to help with the symptom of brain fog? Really? I've never heard of that. (Doesn't mean it's not possible, of course ...)Did you get any kind of explanation as to how or why that might work? I've read some previous posts from people talking about how OTC cold remedies (sudafed among them, I suppose) make their POTS symptoms worse (particularly tachycardia). I don't know about the dizziness part... Is his bp low? is he able to keep up his salt and fluids at this time? wearing compression socks to keep blood flow up? The zoloft dose could be too high, but if the dose is lowered, there may be side effects to that for a little while, so be sure to give it enough time to make a good judgment about whether that might help.Not sure what else to offer--tho you might try searching for past threads on the topic of sudafed and/or cold remedies to see what others have to say.Best to you and your son,m Quote Link to comment Share on other sites More sharing options...
lalalisa Posted January 9, 2005 Report Share Posted January 9, 2005 Hello!About the Sudafed:--My mom had chronic fatigue syndrome and took this religously each day to help with her brain fog/fatigue.--I on the other hand can't tolerate it - it makes my heart race and also makes me jittery! I guess it's different for everyone,Lisa Quote Link to comment Share on other sites More sharing options...
briarrose Posted January 9, 2005 Report Share Posted January 9, 2005 It is usually highly recommended that you avoid all over the counter cough and cold medication especially the ones that contain Pseudoephedrine which is very bad for you and can exacerbate your symptoms! Quote Link to comment Share on other sites More sharing options...
kristinp29 Posted January 9, 2005 Report Share Posted January 9, 2005 Sudafed made my heart rate skyrocket. Quote Link to comment Share on other sites More sharing options...
violahen Posted January 9, 2005 Report Share Posted January 9, 2005 Hi:I have always been told by my docs to avoid and cough/cold meds....especially the sudafed type. It does make my heart go crazy...I haven't taken anything like that in years..Also, the zoloft dosage sounds really high. I have taken zoloft, but no longer do.I was interested in the fact that your son takes the procrit shots. Do you find it helps? Dr. Grubb has been suggesting it for a year or so. But I hear it is extremely expensive. Is it worth it?Kristen Quote Link to comment Share on other sites More sharing options...
briarrose Posted January 10, 2005 Report Share Posted January 10, 2005 I also agree about the Zoloft dosage, I take 12.5 mg all though my doctor would like me to take 25 mg.About the Procrit, I take the name brand Epogen or Erythropoetin and it has helped immensely! It has increased my hematocrit and hemaglobin, increased my fluid volume, helped with low blood pressure and has definitely helped with my energy level. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 10, 2005 Report Share Posted January 10, 2005 Sudafed is not typically among the first line of treatments suggested for autonomic problems, although, I suppose that it might help someone out there... ? More commonly suggested is dexadrine, which is a stimulant. Caffeine sometimes helps. Related drugs that treat ADD/ADHD, like ritalin, are also useful for some people.Sudafed is usually the added ingredient (decongestant) when you see a medication with "d" on the end of it, like Allegra D, Coridin D, etc. I'm not able to take sudafed at all as it causes my heart rate to skyrocket.Nina Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 10, 2005 Report Share Posted January 10, 2005 beala, I'm very careful with sudafed! I rarely use it, only if I have a bad sinus congestion and even then I use the children's liquid type and take the dose of a 12 year old, or less! Even 1/2 the adult dose can trigger very high heart rates in me. Please verify the suggestion with your son's cardiologist again!tearose Quote Link to comment Share on other sites More sharing options...
steph37822 Posted January 10, 2005 Report Share Posted January 10, 2005 oops Quote Link to comment Share on other sites More sharing options...
joyce68 Posted January 10, 2005 Report Share Posted January 10, 2005 I am also intolerant of otc cold medications, I would think sudafed would make heart rate and dizziness much worse. RE: zoloft dose, I am a nurse and I have seen people on 150 mg daily. I started on 50 mg and it worked initially, but now my heartrate is back up and chest pain is back. Doc is increasing me to 100 mg today. Good luck with his treatment Joyce 68 Quote Link to comment Share on other sites More sharing options...
Guest Mary from OH Posted January 10, 2005 Report Share Posted January 10, 2005 I CANNOT tolerate Sudafed!! It makes my heart race and makes me feel as if I am going out of my mind!! I have read this is common with POTS patients. I am surprised a dr would prescribe it. Just my thoughts. Quote Link to comment Share on other sites More sharing options...
DawnA Posted January 10, 2005 Report Share Posted January 10, 2005 "ditto on sudefed" It makes me feel terribledawna Quote Link to comment Share on other sites More sharing options...
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