MamaTrain Posted March 27, 2011 Report Share Posted March 27, 2011 http://www.drug3k.com/forum1/Heart-Diseases/Has-anyone-heard-of-Postural-Orthostatic-Tachycardia-Syndrome-223402.htm Quote Link to comment Share on other sites More sharing options...
Sallysblooms Posted March 28, 2011 Report Share Posted March 28, 2011 This IS a very good article! Thank you so much. I will keep that one. Quote Link to comment Share on other sites More sharing options...
heathmcev Posted March 28, 2011 Report Share Posted March 28, 2011 Thanks! it's not too long or complicated but v. informative. I've sent it to my family Quote Link to comment Share on other sites More sharing options...
Chaos Posted March 28, 2011 Report Share Posted March 28, 2011 Nice article. Thanks for sharing it with us. The author had some interesting statements in there that I hadn't read on any other POTS sites. I'd be curious to know if there are some published studies on some of the info...like the reactive hypoglycemia stuff, etc. Thanks again for posting this. Quote Link to comment Share on other sites More sharing options...
MamaTrain Posted March 28, 2011 Author Report Share Posted March 28, 2011 I know this article had lots of little tidbits that I had only heard a little bit about so that was nice! Especially the left side heart stuff. I swear in the beginning of my POTS I could roll over on to my left side and my heart would race to like 120 and then I'd roll over and it would slow down. I think it's all related! Thank you Krista for posting on Facebook! Quote Link to comment Share on other sites More sharing options...
rach73 Posted March 28, 2011 Report Share Posted March 28, 2011 Great article thanks for posting it.Rach Quote Link to comment Share on other sites More sharing options...
louloutinks Posted March 28, 2011 Report Share Posted March 28, 2011 In reply to train boy mum, I get that too. Esp in the mornings on waking when I roll over to turn the alarm off and my heart goes wild!Thanks so much for putting the link up - it has explained a few things that I have been worried about - vertigo nausea, chills, fevers, cold hands, stomach stuff,bp variations and the terribly low BP's that my doc said I should be dead with, amongst others!I was diagnosed with Pots and sent on my way, so no real explanation, or information given to me.Excellent article!! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted March 28, 2011 Report Share Posted March 28, 2011 I like this article very much. Was this written by a patient or a Dr.? It covers all the symptoms, which I don't see too often. Wonder if a standing echocardiogram would show the abnormal heart filling that was discussed. Quote Link to comment Share on other sites More sharing options...
MamaTrain Posted March 28, 2011 Author Report Share Posted March 28, 2011 Naomi,I cant figure out who it is written by. At the end of the article there is a link but my server says it cant connect to it so maybe it's out now. I am going to print and save this one as it's very informative! KC Quote Link to comment Share on other sites More sharing options...
firewatcher Posted March 29, 2011 Report Share Posted March 29, 2011 It was written as a patient's report, here is more of it:POTSweb patient report Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 29, 2011 Report Share Posted March 29, 2011 I appreciated seeing this although still a little confused. I never had a documented crash in glucose in any testing I had (and had several glucose tolerance tests durng and after pregnancy), just the same, something after eating carbs especially seemed to cause excessive adrenaline, mimicking hypoglycemia.Researchers now understand that this lowering of blood sugar levels is not the only cause of symptoms. Recent studies show that when patients with reactive hypoglycemia eat carbohydrates, which cause a sudden increase in blood glucose levels, their bodies abnormally produce excessive amounts of adrenaline and other stress hormones. These stress hormones cause many negative symptoms in addition to the eventual crash in blood glucose levels due to excessive reactive insulin production. Quote Link to comment Share on other sites More sharing options...
Chaos Posted March 29, 2011 Report Share Posted March 29, 2011 That was one of the bits I was hoping to find some studies on- the part about hypoglycemia etc. I know when I had a 3 hour GTT and dropped to a blood glucose of 36, I had VERY similar symptoms to what I had with the TTTs when my BP bottomed out. And when I eat sweets or a meal with a heavier carb load, I get a lot of palpitations, tachycardia and tremors etc. So what she's saying in the article makes total sense to my body. I'd just like to see some of the research she says supports that. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted March 29, 2011 Report Share Posted March 29, 2011 I'd like to see the documentation of the glucose issue too.As far as the stress hormones causing an eventual crash, I'd really like to see where a medical article states that. From what I understand, stress hormones kick in to help raise glucose. People with pheochromocytomas(spurts of adrenaline day in and day out) get high blood glucose because of that. Some of them become diabetic until their tumors are removed.I would like to say that when I get stressed, I feel like I get low blood sugar. But, I haven't documented any, but I eat just for prevention's sake. I do get low blood sugar daily if I don't eat for prevention.I know I get "excessice insulin reaction", or hyperinsulinemia. I think that is more what the researchers should be looking at. Why do some of us produce excess insulin and then crash? They can't say, for me, that I am pre-diabetic, because I've had this problem for 20 years! Quote Link to comment Share on other sites More sharing options...
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