icesktr189 Posted December 31, 2010 Report Share Posted December 31, 2010 I have been on .1 florinef but i went in and my cardiologist said i could move it to two. Tried that and it work okay, so went back in again and now he said to take it 3 times a day.. Seems like much to me. Anyone taking this much florinef a day? What side effects have you experienced? thanks :] Quote Link to comment Share on other sites More sharing options...
issie Posted December 31, 2010 Report Share Posted December 31, 2010 I have been on .1 florinef but i went in and my cardiologist said i could move it to two. Tried that and it work okay, so went back in again and now he said to take it 3 times a day.. Seems like much to me. Anyone taking this much florinef a day? What side effects have you experienced? thanks :]Dani,Read the post(s) on aldesterone, renin and salt. You might feel differently about the meds - when you read about it. I've done allot of research on this subject - PM me if you'd like more info.Did they check your sodium levels and your kidney function - too much of the meds and salt can cause problems.Are you still seeing the cardio that you told me about? I felt like he knew the basics of how to treat POTS, but not that much about the deeper things involved with it. I only saw him the one time. He felt like I needed someone who could go deeper and know more. He wasn't aware that the doc at Mayo had come back, because he said he would normally send people to him. I told him that he was back. He thought that that doc would be a good one to go to. Quote Link to comment Share on other sites More sharing options...
juliegee Posted January 1, 2011 Report Share Posted January 1, 2011 Dani-NO!!!! I have serious reservations about that amount of florinef. You are doing OK with 2 pills a day (a whopping dose!) and your doc wants you to go up to 6??? That could be very dangerous and lead to a hypertensive crisis. Please check with another physician. Make sure you have adequate salt & fluid intake with your 2 pills. That may help it work better. Additionally, have your potassium levels checked regularly. You probably need to be on a prescription potassium supplement like Slow K-8.Please tell us you are OK & did not follow this advice.Julie Quote Link to comment Share on other sites More sharing options...
Rachel Posted January 1, 2011 Report Share Posted January 1, 2011 It was my understanding that 0.2mg a day is the max dose for Florinef. I would be concerned about taking a total of 0.3mg a day. I would definitely want a second doctor's opinion on that one.Rachel Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted January 1, 2011 Author Report Share Posted January 1, 2011 Hi! Yeah i wont take it.. He said if i did he would give me a holter monitor, but i dont feel comfortable even with that. I will get a second opinion, i just liked the fact that he was the only doctor that would agree to hydration therapy. Everyone else is so freaked out by PICC lines lolBut thanks! :] Quote Link to comment Share on other sites More sharing options...
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