Shiner Kitty Posted September 3, 2010 Report Share Posted September 3, 2010 Dr. Peter Rowe of Johns Hopkins discusses Orthostatic Intolerance (POTS and NMH) in this archived CFIDS Association Webinar from September 1, 2010 that is one hour and thirty-five minutes long. I've been pausing it and going back to watch more of it later, because I can't sit through such a long video. There are also links to other archived and future Webinars discussing Chronic Fatigue Syndrome, Fibromyalgia, etc. that are also listed if you also have those conditions like I do. If you've already been diagnosed with Dysautonomia and researching for years, there may not be a lot of new information for you. Here's the caption under the YouTube video: "In this Sept. 1, 2010 webinar, Peter Rowe, MD, of Johns Hopkins University School of Medicine describes orthostatic intolerance (OI) and approaches to its treatment in chronic fatigue syndrome (CFS). He explains the different forms of OI, including neurally mediated hypotension (NMH) and postural orthostatic tachycardia syndrome (POTS) and other names used to describe these conditions. Dr. Rowe covers overlapping and co-existing conditions including joint hypermobility, Ehlers Danlos Syndrome (EDS), migraine, allergy, pelvic congestion syndrome. He reviews medications used to treat OI as well as postural and dietary approaches to comprehensive care."You can find the Webinars here: http://www.cfids.org...es2010-past.asp Quote Link to comment Share on other sites More sharing options...
Noreen Posted September 3, 2010 Report Share Posted September 3, 2010 Thanks for posting the link. Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 3, 2010 Report Share Posted September 3, 2010 We LOVE Dr. Rowe. He's been Mack's doc since he was first DXed. I, too, follow his advice as I don't specifically have an ANS doc for myself. Thanks for the link!Julie Quote Link to comment Share on other sites More sharing options...
issie Posted September 3, 2010 Report Share Posted September 3, 2010 Good INFO!!! Thanks for sharing. Quote Link to comment Share on other sites More sharing options...
DancingLight Posted September 4, 2010 Report Share Posted September 4, 2010 I tuned into the webinar live and it was extremely well-done. It is great for anyone...those newly diagnosed and those needing a refresher course. It is a chance to get some great information from one of the best specialists in the world. Quote Link to comment Share on other sites More sharing options...
comfortzone Posted September 6, 2010 Report Share Posted September 6, 2010 Thank you -- while not having POTS - I sure do have issues with plummeting b/p's when standing on my feet for any longer period of time ... regulating fluids and medications, activities etc...can be really challenging - probably a big part of it is learning to have patience when trying to figure out what works best for you to avoid these big dips and the symptoms they cause - I appreciate you posting this ... it was helpful :-) Quote Link to comment Share on other sites More sharing options...
pat57 Posted September 6, 2010 Report Share Posted September 6, 2010 thanks! Quote Link to comment Share on other sites More sharing options...
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