sj75 Posted August 15, 2010 Report Share Posted August 15, 2010 ive got to have some dental work done and need either sedation or a GA for it. Just wondering which may be better for my pots?? i have the adrenergic form. I also know from previous heart procedures that i metabolise sedation very quickly and therefore tend to feel pain during whatever procedure it is.anyone any ideas?? Quote Link to comment Share on other sites More sharing options...
sue1234 Posted August 15, 2010 Report Share Posted August 15, 2010 I am in the same boat, needing basic dental work done. I have been avoiding it, which is the wrong thing to do, but don't know how to get it done either. I'm like you--last time they gave me the non-caine deading agent, and it didn't work. I think I burn right through it too.I would love to just be put to sleep and have it all done--is that a possibility?? Quote Link to comment Share on other sites More sharing options...
sj75 Posted August 15, 2010 Author Report Share Posted August 15, 2010 i know of others in the uk who have had ga's but dont know the criteria the nhs use for this (our private dental plan definitely doesnt cover it). My dentist has referred me to a specialist centre (nhs) that is specifically for people with special medical needs and i guess i will find out more when i see them, but im not sure whether a ga may be a better option if im offered it?I am in the same boat, needing basic dental work done. I have been avoiding it, which is the wrong thing to do, but don't know how to get it done either. I'm like you--last time they gave me the non-caine deading agent, and it didn't work. I think I burn right through it too.I would love to just be put to sleep and have it all done--is that a possibility?? Quote Link to comment Share on other sites More sharing options...
persephone Posted August 16, 2010 Report Share Posted August 16, 2010 DON'T DO IT! I went GA in January for dental work and had the worst pots crash of my life afterwards that floored me until April.If I had the choice again I would rather have sedtion and feel pain than face the crashing bp and crazy tachycardias I had.Horrible Never underestimate the power of GA on pots to make you feel horrendous Quote Link to comment Share on other sites More sharing options...
sj75 Posted August 16, 2010 Author Report Share Posted August 16, 2010 i know , its so hard to know what to do for the best though. After having my reveal fitted last year i had a pots crash and that was only under local (although i had reacted to that and the iv antibiotics). I was wondering with ga wether i would be monitored better though?DON'T DO IT! I went GA in January for dental work and had the worst pots crash of my life afterwards that floored me until April.If I had the choice again I would rather have sedtion and feel pain than face the crashing bp and crazy tachycardias I had.Horrible Never underestimate the power of GA on pots to make you feel horrendous Quote Link to comment Share on other sites More sharing options...
HopefulLady Posted August 16, 2010 Report Share Posted August 16, 2010 I always get lidocaine without ephinephrine for basic fillings and one root canal I had done. I don't get the other stuff or my heart would be racing out my chest. Hopeful you can find a solution as to what to do. Quote Link to comment Share on other sites More sharing options...
nmorgen Posted August 16, 2010 Report Share Posted August 16, 2010 I agree, ask for pure lidocaine, no steroids or anything else. The pure lidocaine should numb you enough for the procedure and I have never had any bad crashes from it. I'm also hyper. Quote Link to comment Share on other sites More sharing options...
Maxine Posted August 17, 2010 Report Share Posted August 17, 2010 Lidocaine without epi is even bad for me. Lidocaine is toxic to me, and my body gets really messed up from it------tachy, tremors, gagging, shaky, dry mouth, and feel like I'm losing my mind. Carbocaine was OK, it seemed to not have nay affect on me when I had the tooth pulled. However, when I had a lot of it to remove the cardiac loop recorder, I had a huge increase in blood pressure. I took a half of a klonopin and it faded over a fairly short period of time.Why do we have to be so complicated?A normal day would be nice----just to feel normal, take a long walk-----and not have to worry about something happening.Maxine :0) Quote Link to comment Share on other sites More sharing options...
comfortzone Posted August 17, 2010 Report Share Posted August 17, 2010 Just as an aside - maybe you already know this - but up to 80 something percent of hypermobility syndrome patients or EDS patients have dysautonomia or POTS.... And the thing with that is - since it's a genetic collagen issue - and collagen is everywhere - a chunk of hypermobility syndrome patients get little or no relief with the normal doses and amounts of local anesthesia used for dental and other procedures. I guess the reasoning can be a few things - one I read is that the collagen matrix is different and so the amount of med injected or required is different somehow.......another thing was that the rate of absorption of the med into the tissues was thought to be far more rapid -- where it gets dumped into the blood stream and metabolized rather than sticking around to do it's job. So more injections are needed ..... & you can get that horrid feeling and heart palpitations, shakiness etc - when your system gets slammed with the lidocaine. I ended up in the ER by ambulance once from that happening at the dentist - scared the you know what out of everyone...The second time I experienced it was awful - I woke up from one of my knee replacement surgeries with what felt like zero pain relief. I'd had hip replacements before and did okay - but this was mind-blowing pain. The surgeon told me he loaded the knee up with local before he closed the surgery ... so my guess is that it just didn't work. So for the next knee I had the indwelling pain pump doing a femoral block - that was the cadillac of anesthesia for sure - and they gave me general too - while my other joints were with a spinal.So while not formally diagnosed with POTS yet - I do have the hypermobility syndrome -- for dental work I just do the local shots - as many as it takes....I make sure everyone in the place is on board with what had happened once before in another state..... & I think it's all been okay since........but I do get anxious - afraid I'll start that shaking thing.......but by the time I get truly upset about it all - the work is done.Blessings on whichever route you choose! Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted August 17, 2010 Report Share Posted August 17, 2010 This is a great way to demonstrate that POTS is not the same as anxiety.Our bodies can go haywire with GA!!! I react to the anesthesia used for colonoscopy too!Anyway, I passed out cold at the dentist when given novacaine. I was very sick afterwards too. Now the dentist use Septocaine but it is fast acting and not as strong.good luck Quote Link to comment Share on other sites More sharing options...
nmorgen Posted August 17, 2010 Report Share Posted August 17, 2010 I'm hypermobile, but I've never been diagnosed with EDS. I do have the hyper POTS. I guess I'm lucky that I don't seem to have any problem with GA or lidocaine. It's funny that even as small as the hyper POTs group is that we seem to be different. I remember corresponding with Dr Grubbs about 1 1/2 yrs ago and he said that they had found several different subtypes of hyper POTs. The paper was supposed to have been published last year, but I have never been able to find it. Has anyone else seen this paper or spoken to Dr Grubbs about their discovery on subtypes of hyper POTs? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.