HopefulLady

I always get lidocaine without ephinephrine for basic fillings and one root canal I had done. I don't get the other stuff or my heart would be racing out my chest. Hopeful you can find a solution as to what to do.

Heart rates that high are usually the result of an arrythmia .. Sounds like A-fib to me it's very very common from what I have read and easily treatable once it's caught. Heart rates that high are usually from A-fib ... I would look into getting a second opinion from an electrophysoligist they specialize in Arrythmia's and the electrical conduction of the heart. A-fib comes and goes and can resolve itself during an attack on it's own or sometimes medication is needed to restore a normal heart rhythm. If you wore an event or holter monitor and showed symptoms it would have picked it up and the doctors can tell where the fast rhythm is originating from in the heart. They should be able to tell you based on the ekg recording what your heart was doing at the time it was going 300bpm. If they can't pick on anything with the recorder you could have an EP study done where they can try and provoke and arrythmia during the test. Also have you ever had a sleep study done? You may want to have one if your having tachycardia during sleep.

For me I have to turn everything off TV, lights, music, ect. or I will not go to bed those things are all major distractions. A fan by my bed and a dark room, and a cozy bed usually does the trick for me... sometimes I have to lay there for 30-45 minutes but eventually I fall asleep.

Before starting a beta blocker bending over would be a chore for me when cleaning the house .. It felt like my heart would race a million miles a minute and bending over def triggered symptoms mostly tachycardia . When I would clean the house I would take several small breaks in between stop and go that is how I got the house cleaned. sometimes I would just have to sit for 20 minutes at a time get back up and do some more. My kids also help clean up so like they would hold the dust pan why I would sweep and they help vaccum pick things up ect .... It helps to have them there my kids are 9 & 12 they can pretty much do anything I can when it comes to cleaning. If you have a helping partner it def helps get things done faster and less stress on your body.

I have those same issues .. I can go from normal sleep 6-8 hours a day .. to 12-14 hours a day sometimes longer where I just can't get up .. and then I can't sleep at all sometimes .. I thought the effexor was causing my sleep schedules to screw up like that. I know insomnia is a side effect of the drug. If I sleep too long I wake up with the worst headaches on earth. I notice closer to my period I tend to sleep really long hours.

Well after 3 days of being on bystolic .5 mg I am quite shocked it's actually working!!! My heart rates are well within normal ranges both supine and standing ... I am in total disbelief but do hope it continues to work. I haven't checked my BP but I have had virtually no side effects no dizziness ect which is so amazing because normally I get them all and then some. The only thing I notice is when I take it in the morning about 30 minutes later I feel a little sleepy. But it wears off as the day goes on. I have been running around all day doing laundry and cleaning and my Hr stays in the mid 90's to low 100's vs 140 + sitting it's been in the 60s-70s .. I really hope this Bystolic continues to work because I feel a sense of relief for the first time my heart does not feel like it's overworking. When I tried the 2.5 it wasn't really doing anything so I took the other half that's when I noticed a huge difference at least for me. I also have been sleeping through the night on it. Only marked side effect for me is slightly fatigued about 30 minutes after I have taken it but does wear off in a few hours. I was scared to death to take a beta blocker but this may just be what I needed. I can't take the other beta blockers because I have exercise induced asthma. It's amazing how differently we can react to medications.

Also the fruit water like fruit20 or one of the other flavored water's are pretty good and they are sweetened with artifical sweetner's not everyone can tolerate splenda ect but it sure tastes better than regular water for a change! I also second the gatorade ....

I personally never liked evian it had a salty taste to it and made me sick to my stomach. Before being medicated for pot's I use to get quite nauseated from water it would make me gag and then I would throw up. Certain foods like peanut butter and jelly made me sick too. It's very strange. Sometimes if you drink too much water that can make you feel nauseated too.

Thanks for your input!! I noticed after I took the second half of the bystolic .5 my heart rate is staying in the low 90's while upright. I hope it continues. I am actually pretty shocked that I have not felt any side effects as of yet just a little sleepy at first and a sense of calmness. I really hope this drug can keep my heart rate's in check. Thank You again for your input!!! So far this beta blocker seems pretty mild. Compared to those antidepressent's.

Hey everyone I just got back from the mitral valve prolapse center in Alabama my appointment was this Monday. Susan Philips after doing an echo, stress test and looking at my tilt table done last month and 9 years of medical records diagnosed me with Pots/Dysautonomia. She told me to stay on the effexor because it controls the dizziness and she prescribed me a Beta Blocker Bystolic .5 mg and Kolonipin .5 as needed. My question is how long does this beta blocker take to work? I ask because I started off with 1/2 of tablet 2.5 mg to be safe I know how I react to drugs but after about 2 hours I only felt slightly sleepy ... My heart rate really hasn't slowed down too much when I stand so I just took the other half about 30 minutes ago to see if it lowers my heart rate some more. I just checked it laying down right now it's 77 bpm... standing 106 ... Do these things take a few days to get into your system? This is my first time taking a beta blocker so I don't know LOL ... Any help would be greatly appreciated. Also I don't know why she gave me Kolonipin as I don't feel like I need it I am not anxious now that I know what's wrong with me lol. On another note I do notice a calming effect this bystolic is having on me. I guess I will have to really monitor my Heart rate these next 2 weeks while I am up on my feet to see if it's helping keep it under control. I have a follow up Dr. Susan Philips in 6 weeks to see how the medication is working.

I just got back from the Mitral Valve prolapse center of Alabama and was diagnosed with Pots and the doctor there prescribed me Bystolic 2.5 mg, and Kolonipin 0.5 mg and am currently taking Effexor Xr 37.5 mg. I haven't taken the Bystolic yet but plan to within a few days so I will let you know how I do with it. I know it's one of the newer beta blockers at least here in the US.

If your doing well without the meds than IMO I don't feel you should take it. The only thing is if your heart is over working itself overtime that in itself can cause problems from what my cardio told me. You don't want to walk around with elevated heart rates all the time either. So I guess it really depends on how hard your heart is working all day long. I hope your able to make the best choice for you. Good luck

I wanted to add a note about the zoloft... I have never taken zoloft but I did actually try lexapro and paxil. I broke out in full blown hives with them so I stopped of course. I ended up ultimately on Effexor XR which is an SNRI similar to an SSRI only the SNRI works on nor-ephinephrine as well as seritonon. Just to let you know these medications can cause some pretty bizzare side effects when first starting them. I am on an Extended release form which I seem to tolerate much better because it's time released and doesn't all go into my body at once. They also make liquid forms of these drugs too if your extremely sensitive to the drug/side effects. Just my own experience it took me about 4-5 months for the side effects to wear off. Now I don't usually get side effects UNLESS I miss a dose. It's important to always take these type of drugs at the same time everyday. They all have side effects some worse than others. For me I had really strange dreams, dizziness which I was already used to LOL, flushing, mild headaches, and parathesia(burining numbing senstastions) yawning, spaced out feeling, sleepiness. These eventually went away after a few months and I started to feel better. If you can make it through the side effects eventually your body will adjust to the medication. If you are having any side effects that are not listed as common with the drug best to talk to your doctor for adjustments. ALWAYS start on the lowest dose and go up gradually overtime. There are many options some people do better on extended release (like me) or liquid forms, because most of us are already chemical sensitive this might be something you should bring to your doctors attention. But the side effects do go away as disturbing as they can be sometimes your body does adjust. Your not alone starting new medications can be very scary and we are all here if you need any help. Tara

I can understand your concerns. I have never been very willing to take medication. I am one of those people who just refuses the thought of medications being pumped into my system. I have been on Effexor xr for 10 years on and off. I was experiencing such bad dizzy spells that totally ruined my life and had me in the ER all the time. Before I figured out what was really going on... my doctor prescribed me Effexor and tossed it up as anxiety. I didn't want to take it though but I just couldn't live like that so I guess I had no choice either deal with the dreadful symptoms or take the medication. Lucky for me the Effexor did control the dizziness and I was able to live a half way normal life again. So I guess what I am trying to say is if the medication is going to help and your symptoms are very disturbing that it's preventing you from functioning you should at least give it a try and see if it helps. Ultimately though it's your health and know one knows your body like you do. But I understand your fear I hate medications and I am really stubborn when it comes to taking them because I don't know what these drugs are doing to my body long term that's my greatest fear anyway. But sometimes with a life altering illness we are left with no choice. I hope you are able to make the right choice for you! Sometimes it can be hard to decide.

That's great you got a diagnosis! I am actually on my way to the same clinic next month June 21st! Sounds like I am going to be in good hands. I am seeing the same doctor you saw. I am glad your getting the treatment you deserve! Hope your feeling better now that you have things sorted out with your illness. And thanks for the great feedback about this clinic.

Hi Everyone, I just wanted to know if anyone has been to the Mitral Valve Prolapse Center of Alabama? Dr. Deering has requested that I go to an Autonomic clinic for further testing and for medications. He did diagnose me in his office with POTS after my TTT. But says he thinks it would be a good idea to see one of the Docs at Mayo, Vanderbilt, Ect for longterm treatment. I have an appointment on June 21st. Anyone have any good experiences with them? Looking forward to going. I feel like I have already had a billion tests! I can't imagine what else they will do LOL.

Hi I have the same problem! My BP goes up when I am on my feet or doing any sort of activity. Laying down and rested it's normal. I just took a tilt table test a few days ago. And my BP spikes were completely abnormal they were so high I didn't even know my BP was that high while I was on my feet. Apparently the longer I am on my feet they higher my BP goes and the higher my heart rate goes. Laying down for awhile will bring it back down to normal. It's normal for me to take several brakes while doing house work or normal activities because of tachycardia. I was told I have POTS and the doctors are going to start me on a beta blocker to try and control my BP and heart rate swings. I also take effexor xr for my dizzy spells. I wake up with a heart rate of about 60-70. But the moment I sit it's in the 80's 90's.. Standing it's in the low hundreds the longer I am up or an sort of activity it just keeps going higher and higher. Just to clean the house I am in the 150's. And I am not doing anything strenuous that would cause my heart rate to be so high. I feel better when I am laying flat down on my back and my heart rate will drop back down 30-40 points as soon as I am laying back down. They only was I was able to figure this all out was getting a sports watch to track it number's wise. I just picked up a blood pressure monitor as well to start keeping a log of my BP. I have had stress tests, always normal. echocardiograms normal, and numerous EKG'S always sinus tachycardia but normal rhythm. Not to mention the numerous blood tests , urine tests, as well as xray's/CT's. Which have always come back normal. My EP doc got to see how whacky my vitals were when they did my Tilt Table Test. The was how I got diagnosed with POTS. If you haven't had one you should def get one done if possible. Also I had a 24 hour holter that was normal. But I went back for a 30 day event monitor just to be sure I don't have any underlying arrythmia in the mix of this all. Since arrythmia's don't always show up on a 24 hour holter best to do the 30 event monitor. It's taken me 10 long years to give my illness a name. Sometimes it takes awhile just keep on top of your doctors and if you know something is wrong don't let them tell you otherwise!

I am so sorry for anyone who has had to battle this alone. I too have had family who refused to help me they insisted that I was having anxiety attacks when I knew something was very wrong with me. The medical field was against me my family was against me. I started to feel like some sort of nutcase. I can't tell you how many times I was symptomatic and cried to my mother to please help me and she just looked at me and said your just anxious . Then because I was having a hard time working and sleeping my life away because I was so worn out from tachycardia I was called lazy keep in mind before all this happened I worked in corporate america as an account sales executive I was always active and loved to work. Basically I have been my best advocate and support system through this whole thing and have just accepted being alone. Now that I know what's wrong with me my family is much more supportive and they have told me how sorry they are. But It's hard to trust them the way I used to. I just remember how mean my sister was to me. And how her and my mother would gossip behind my back about how I would sleep all day and wouldn't work. I am also a single mother so it has been hard every bit of energy I have must go to them because they come first. I can remember the nights of being so symptomatic dragging them into the ER at all hours of the night. I was so terrified not knowing what was going to happen to me or where my kids would go if something did happen to me. My kids mean more to me than anything in this world and all I could think about was them. My children are my strength they keep me alive and going. I thank god everyday for them because they are the reason I have fought so hard to get to bottom of what was going on with me. I have been alone for a long time and have become so happy and content being alone with my kids. I don't know how I have made it this far all I know is GOD is good. And he has pulled me through this and he has always made a way to cope through this illness. I truly believe god has compassion for the ill. I may not have everything in the world I want but I always have what I need. And for that I am truly humble and grateful. It's sad that I have come to a point in my life that I would rather be alone than have my family around who will only make my illness worse. Sometimes you have to rid yourself of the people who bring you down. Being sick with this type of illness you cannot afford to be stressed out. I truly feel for you guys my heart just pours out with compassion for you all. Stay strong you will endure just keep your faith and know that after every storm comes a rainbow. There is a reason for every trial and tribulation we go through. Our suffering is not in vain

Thank You Isse. I can't imagine not having any comfort at all with medications. I have read some of the posts stories on here and I feel so lucky that something is working and treating my symptoms god knows I couldn't take care of my 2 children if I had to live with those symptoms 24 hours a day like I was off the effexor. I am a single mother and it's been tuff being sick and not being able to do all the things I want to do. But there is no better relief than sleeping at night now knowing what is going on with me. I didn't know one minute from the next where I was going or what was going to happen to me. I went back to college and had to quit because of my symptoms. I just want to live again and have more energy than I normally do. But I can't complain when some of you don't get any relief from medications. I don't know how you guys pull through. I thought I was dying a slow death everyday for the last 10 years being on the effexor has at least allowed me to get out the house and do the simple things I need to do without feeling faint and bad all day long. You guys give me hope and encouragement to fight back at this thing and I am no longer terrified because I know I am not alone. That in itself gives me a whole lot of peace. Thank You so much I can't tell you enough how grateful I feel to be surrounded by you all. You all are in my prayers and I hope that we can find a cure for this terrible illness someday. Tara

Thank You guys again .. I am learning so much ... I was under the impression that the Effexor had it all under control because since being on it I know longer have the pre-syncope spells anymore. But I guess it's not controlling my HR or BP fluctuations too well. My DR's said they don't know how I have been able to go 10 years like this. I told them because I was told I was having panic attacks so I just learned to deal with it. It's sad that many of us have had to go through this so long before finally getting decent treatment. Anyway Simmy I do have a sports watch a polar with a chest strap and I am using it along with BP machine ... Simmy I took your advice and waited 5 minutes this time before taking a standing reading this time my BP dropped heart rate still went over 30+ . I have been asleep most of the day I just feel worn out. I will be glad next week when they can give me something to slow my heart rate so I don't feel like I am running a marathon all day long. Thanks Again Everyone!!! BP Laying down 120/83 HR 70 BP Standing after 5 minutes 111/80 HR 105

Ok so I took Simmy and Arizona's advice and bought a BP monitor ... Yesterday I had my TTT and my Blood pressure and heart rates were astonishing before the test even started. But here is the crazy thing Here I am at home I just measured my BP AND HR BP SUPINE - 113/71 HR 72 STANDING- BP 132/80 HR 105 I am totally confused ? Or is this just a normal thing for someone with dysautonomia to be such fluctuations? This makes no sense to me ?!? How could my BP be so high yesterday and be normal today????

I have talked to other's who have 10,000+ a day and from what they have told me unless you have heart disease or structural heart issues they will not decrease your life span and are harmless in a structurally normal heart nor do they wear out your heart. I get them but not nearly as many, a few a day is bad enough for me I can't imagine getting that many but I feel everyone I get not sure if you feel yours or not. At 2200 in a 24 hour period you probably are so used to them that you don't feel them as much.

I am Thank You guys again You guys are so awsome!!! xoxoxoxoxo

Also the nurse doing the TTT said that she noticed that any slight movement would send my heart rate soaring. She said she has never seen anything like it. I don't have to move much for my heart rate to jump.

Thank You so much Simmy and Arizona you guys have no idea how much this means to me to have some support through this whole ordeal. I am so sick right now I feel like I am going to throw up I don't know if it's from that nitro but my head hurts and I feel nauseated. I will be getting a BP monitor though to check it here at home. I have a follow up with Dr. Deering to start a beta blocker next week as he was not in the office today. But it looks like they are going to send me off to vandi for further testing.