How Do Uk People Get To See Us Experts- Want To See Blair Grubb

[persephone]

Hello everyone. I'm currently in hospital in London with a professor of Syncope looking after me (not Mathias, but a cardiologist instead). They even have nurse specialists in syncope. The nurses are brilliant! They really care and are very smart. They know how it feels to live with this.

It looks as if my EPO has stopped working, because my haemoglobin level is low, and it should actually be abnormally high while I'm on epo. We've tried to double the dose to see if that reduces my symptoms. Failing that, we may be trying octreotide next, I'm not sure.

Someone suggested to me that during my year at Harvard, I might think about seeing Blair Grubb. How do I go about this? Do I get a UK GP to send a referral? Do I email themmyself? How much notice would they need- should I make contact now in time for the fall? How does it work? Does anyone know?

I came to see a UK expert about the flare up on March 3rd but they 'couldn't do anything'....

I'm holding out for this new syncope chap, but I want to make sure I can see someone while I'm in the US, and maybe speak to them about treatments available over there that aren't here....

Thanks in advance for any info you can provide.

[MightyMouse]

You don't need a referral--you simply call for an appointment as a new patient. The wait, however, can be several months. They usually can tell you in advance how much the appointment will cost. If you plan on seeing Dr. G's assistant, Beverly, then the wait isn't as long.

[yogini]

You should find out what kind of health insurance you will have through the school. Then you can figure out if the visit would be covered by the insurance or if you would have to pay out of pocket for the visit.

[Maxine]

I would call now if you want to see him when you get into the US. If you're here for a year, you would see him before you leave to back to the UK. don't settle for an appt. with the NP, you need to see Dr. Grubb.

I'm sorry you're going through this, it really brings you down emotionally too when the crash comes. Today we went to the mall, and I'm a bit bummed. I'll feel OK, so I say let's go, then BANG------it's doesn't take much.

Pacing yourself is important........very much so. I hope they are able to get you back to a better place with your symptoms.

Take Care,

Maxine :0)

[mkoven]

I once called to make an appointment and they requested records before even scheduling me, so although you may not need a formal referral, any info from previous doctors-- notes, test results--would probably help. I your current doctor can compose a letter, summarizing everything, I'm sure that wouldn't hurt. And then depending on your coverage when you're in the US, you may need to pay.