gomindy21 Posted December 3, 2009 Report Share Posted December 3, 2009 My symptom seem to change all of the time, but the one symptom that has been consistent for a few weeks is that the longer I lay down the lower my blood pressure gets, and occasionally my heart rate will get really low as well(lowest 51). Going to sleep is very difficult because my blood pressure likes to drop to anywhere between 78/53 to 98/48 when laying and that's almost every night lately. When I am up during the day often my blood pressure goes up with my heart rate. Anyone else experience the low blood pressure when laying issues and if so, what kind of POTS or other(EDS, etc.) do you have? Quote Link to comment Share on other sites More sharing options...
Machair Posted December 4, 2009 Report Share Posted December 4, 2009 Yes I too have very low blood pressure after lying in bed all night and it is similar to yours. I think it is why I find getting up do hard in the morning and why I am often dizzy even lying in bed sometimes. I also Have ME and I think this is why I have the low blood pressure. My pulse rises with standing though dramatically. Quote Link to comment Share on other sites More sharing options...
gomindy21 Posted December 4, 2009 Author Report Share Posted December 4, 2009 Yes I too have very low blood pressure after lying in bed all night and it is similar to yours. I think it is why I find getting up do hard in the morning and why I am often dizzy even lying in bed sometimes. I also Have ME and I think this is why I have the low blood pressure. My pulse rises with standing though dramatically.Thank you for replying. I wasn't sure if this was a POTS thing or not. It's been concerning me because I know that really low blood pressure is not good for the body and I don't get to see Dr. Grubb until January. What is ME? Quote Link to comment Share on other sites More sharing options...
potsgirl Posted December 4, 2009 Report Share Posted December 4, 2009 I have POTS/OI (orthostatic intolerance) and have low blood pressure most of the time. It's definitely a dysautonomia thing. What does your HR do when you're lying down? My HR would go into the 30s lying down so I ended up with a pacemaker, but I also have heart issues. Lying down, my BP is usually about 90/65 and my HR is always 60 now with the pacer. When I stand, my BP is usually about 70/55 with a HR of 130. Ugh. Low BP can make you feel really nasty, and very fatigued. Quote Link to comment Share on other sites More sharing options...
Maisie87 Posted December 4, 2009 Report Share Posted December 4, 2009 gomindy,My blood pressure drops while lying down as well. Seems it should be the opposite doesn't it.. My blood pressure also rises a bit soon after I sit or attempt to stand. I can't stand long enough to see what happens after a few minutes- to see if it will level out or not.My only diagnosis right now is POTS, but I'm going to see an endocrinologist next week to test for adrenal failure. We will see..you're not aloneMaisie Quote Link to comment Share on other sites More sharing options...
gomindy21 Posted December 4, 2009 Author Report Share Posted December 4, 2009 I have POTS/OI (orthostatic intolerance) and have low blood pressure most of the time. It's definitely a dysautonomia thing. What does your HR do when you're lying down? My HR would go into the 30s lying down so I ended up with a pacemaker, but I also have heart issues. Lying down, my BP is usually about 90/65 and my HR is always 60 now with the pacer. When I stand, my BP is usually about 70/55 with a HR of 130. Ugh. Low BP can make you feel really nasty, and very fatigued.Potsgirl, my heart rate sometimes drops while laying down, but occasionally it rises to the 70-90's while my blood pressure is still low.Not quite as high as yours gets when laying. That must feel very bad when your hr gets that high with low bp. And yes, I think the feelings I get while my blood pressure is low is a worse pain then when my heart is racing. Quote Link to comment Share on other sites More sharing options...
gomindy21 Posted December 4, 2009 Author Report Share Posted December 4, 2009 gomindy,My blood pressure drops while lying down as well. Seems it should be the opposite doesn't it.. My blood pressure also rises a bit soon after I sit or attempt to stand. I can't stand long enough to see what happens after a few minutes- to see if it will level out or not.My only diagnosis right now is POTS, but I'm going to see an endocrinologist next week to test for adrenal failure. We will see..you're not aloneMaisieMaisie 87, As I was looking up what causes low blood pressure, I did notice that adrenal problems are a possible cause. I was seeing a naturopath before I knew I had pots who had given me a supplement for my adrenals because my coritsol levels were low. Unfortunately my body didn't agree with some of the ingredients in the supplement(ginseng, niacin). Let me know how your appointment goes and if he suggests anything to take. I hope your appointment goes well Quote Link to comment Share on other sites More sharing options...
Nikki Posted December 4, 2009 Report Share Posted December 4, 2009 My blood pressure is also low while laying now. Usually in the 90/65 range. It very rarely goes over 100 unless I'm having a good day. I'm dizzy while I'm laying down too, so I think that might be why. My doctor said my blood pressure should be normal and my symptoms should go away when I lay down because there is no gravity? That doesn't seem to be the case with me though..so I honestly have no idea what to think. :-/ It does happen though. Quote Link to comment Share on other sites More sharing options...
gomindy21 Posted December 4, 2009 Author Report Share Posted December 4, 2009 My blood pressure is also low while laying now. Usually in the 90/65 range. It very rarely goes over 100 unless I'm having a good day. I'm dizzy while I'm laying down too, so I think that might be why. My doctor said my blood pressure should be normal and my symptoms should go away when I lay down because there is no gravity? That doesn't seem to be the case with me though..so I honestly have no idea what to think. :-/ It does happen though.There seems to be a lot of unknowns with our illness doesn't it! I'm so glad that there are forums like this so we can all colaborate. Thanks for sharing Quote Link to comment Share on other sites More sharing options...
potsgirl Posted December 4, 2009 Report Share Posted December 4, 2009 Just a quick note....BP is not considered low unless it's under 90/60 (? unsure of the bottom number, but 90 is definitely correct). It's considered a problem when it's that low and one is symptomatic. There are people who maintain BP's under 90/60 who feel just fine, especially those who are physically fit. Quote Link to comment Share on other sites More sharing options...
juliegee Posted December 4, 2009 Report Share Posted December 4, 2009 Mine goes really low too when I lie down, like 59/41. BUT, I usually feel OK. Well, maybe not because I took it (I only take it when I feel weird.) When I am hospitalized, the automatic BP cuff has an alarm that goes off EVERY time that durn thing takes my BP. I have been worked up for Addison's several times. I think it's an autonomic/connective tissue thing. It usually doesn't bother me. My HR (when lying) is in the 60's, sometimes higher. I would be concerned if yours didn't rise appropriately when you stood up OR if it makes you really symptomatic- then it should be addressed. I sometimes take florinef in the AM. It always helps and makes me feel better.Julie Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted December 5, 2009 Report Share Posted December 5, 2009 Sometimes I have to take off my compression hose at night because my heartrate goes too low but I haven't had low bp at those times. I have progressive dropping of bp during sleep. Once up and around and hydrated I hover around around 110/70.Sorry I can't help more.tearose Quote Link to comment Share on other sites More sharing options...
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