Guest Mary from OH Posted October 18, 2004 Report Share Posted October 18, 2004 Does anyone have experience with testing for pheochromocytomas?Also, what exactly was your BP like? My resting BP is very low; however, I just found out that my BP dramatically goes up when I stand up from a sitting or laying down position (found by + tilt table test). I have ALL the other symptoms. I have NOT been tested for this yet, but have been dx with POTS. I am concerned that I may have the adrenal tumors though. My mother had hyperparathyroidism and that can be a familial indicator... I just wonder if I need to talk with my dr or if they will think I'm nuts. One of the reasons I'm concerned is that the med that they want me to take (midodrine) is contraindicated if you have the adrenal tumors. Any advice/experiene?Thanks!!Hugs and Prayers,Mary from OH, POTS, FMS, MPS, migraines Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.