janiedelite Posted May 28, 2009 Report Share Posted May 28, 2009 I've been trying to get into my gyno for 5 months to get my yearly female exam, but she's been ill herself and I've had several cancellations. So I figured I'd just get it done by my PCP, who also facilitates getting treatment for my POTS. I always bring someone with me to Dr's appointments but didn't today because I was feeling well enough to drive myself and I was having my pap and all that stuff done. My PCP is always patient and listens to me and facilitated all my disability paperwork too. So she asks if I could go back to work as a triage nurse, as I would be working sitting down and using the phone (I think she meant like a call center nurse). For those of you who lost your ability to work because of dysautonomia, I'm sure you can understand how painful it is to have to justify not being able to work. I just don't think she understood how tiring small tasks, like talking, can be with this disease. So I told her how talking makes me flush, BP rises, and I get so tired. I told her that I've thought about working many times, but I would have to have a job with flexible hours, short shifts, and I need to call in sick often. Then, I explained that I physically couldn't work full-time anyway, and that small activities make me tired for several days afterward. I told her that I probably could work a few hours at a time, if I was feeling well enough, but I couldn't do anything else because I'd be resting to recover and prepare for my next shift. I feel like this was a very inadequate explanation. I mean, could I have been more descriptive than just saying activity made me "tired?" How about nauseated, brain fogged, painful, ...? I wish I could have explained myself better and when I see her again in another 6 months, I'll have someone else with me who can help me answer these questions. When she initially asked how I was doing I told her I was doing well, because compared to my worst days I was pretty good! Maybe I should act more sick. On my way out of the exam room, I checked myself in the mirror and from my chest up was bright pink. My skin burns so much. Even my eyelids and my ears are flushed. Now I'm wiped out. Maybe I should have let her know how long it takes me to recover from going to the doctor?! Quote Link to comment Share on other sites More sharing options...
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