ken870 Posted January 27, 2009 Report Share Posted January 27, 2009 i have not posted lately because i have been waiting on a call from vanderbilt and this morning i finally got the call and i will be going into the research study march the 23rd so hopefully i will finally get the correct treatments for my pots and dysautonomia because the doctors tell me here that they do not know how to treat me. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 27, 2009 Report Share Posted January 27, 2009 Good luck with your upcoming appointment. I hope that you find treatments that help you.Nina Quote Link to comment Share on other sites More sharing options...
firewatcher Posted January 27, 2009 Report Share Posted January 27, 2009 HOORAYYYYYYYYY! Finally! Quote Link to comment Share on other sites More sharing options...
momofsara Posted January 27, 2009 Report Share Posted January 27, 2009 GREAT NEWS!!!!!!!!! Hope all goes well for you. Susan Quote Link to comment Share on other sites More sharing options...
juliegee Posted January 27, 2009 Report Share Posted January 27, 2009 Yeah!!! Quote Link to comment Share on other sites More sharing options...
Rachel Posted January 27, 2009 Report Share Posted January 27, 2009 I'm glad you get to go to Vanderbilt. I hope things go well for you.Rachel Quote Link to comment Share on other sites More sharing options...
ken870 Posted January 29, 2009 Author Report Share Posted January 29, 2009 i thought i would tell everybody that i am going as a combination research and clinical patient because of my high heart rates that have gone as high as 254 one time and the doctors still would not give me anything for it and i had to spend the day in the er room so i think now that i am finally gonna get help at vanderbilt because i am not getting any help from the doctors here. Quote Link to comment Share on other sites More sharing options...
iheartcats Posted January 31, 2009 Report Share Posted January 31, 2009 Awesome. Let us know how it goes/what you find out! Quote Link to comment Share on other sites More sharing options...
stillkickin Posted February 24, 2009 Report Share Posted February 24, 2009 Congratz!!!! Keep us posted! :0) Quote Link to comment Share on other sites More sharing options...
ken870 Posted March 21, 2009 Author Report Share Posted March 21, 2009 this is just a note to tell everybody that we will be headed to vanderbilt tommorrow morning and we will stay in the holiday inn select that night before going into the research study monday so think of me and pray that they can find the right treatment and medicines that will help me get some quality of life and chrissy did you get in touch with vanderbilt and will they let you get into a study because i replied back to your message and did not hear back from you. Quote Link to comment Share on other sites More sharing options...
Rachel Posted March 22, 2009 Report Share Posted March 22, 2009 I hope it goes well for you. Let us know what you learn!Rachel Quote Link to comment Share on other sites More sharing options...
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