hayley Posted September 14, 2004 Report Share Posted September 14, 2004 very angry today i went to see my cardiologist this morning he drives me mad because he originally told me i was crazy then i had a tilt table test and i was diagnosed with pots.anyway hes so nice with me now which makes me angry and hes never seen anyone with pots before.i went to see a doctor who specialises in pots in august and he said ive got a joint hymobility syndrome .anyway he wants me in hospital for 5 days for tests to find if there is a cause for my pots and my cardiologist wants me in aswell because i faint between 5 and 10 times a day.so i rang up the hospital as i havent heard anything its been six weeks.they said that they havent recieved the paper work i was not impressed so im going to ring the secretary everyday this week to get them to do something.sorry i just needed to let off steam.i hope it all makes sense. Quote Link to comment Share on other sites More sharing options...
Ling Posted September 14, 2004 Report Share Posted September 14, 2004 Good luck and we will be thinking of you. Don’t give up. We can all write books on doctors and their opinions. I tell you some of them don't deserve to be doctors. Quote Link to comment Share on other sites More sharing options...
ethansmom Posted September 14, 2004 Report Share Posted September 14, 2004 Sorry to hear about this frustrating experience. We can definitely all relate with our horror stories about dealing with doctors- but I'll spare you mine Just be patient and don't be afriad to be assertive to get what you need. Quote Link to comment Share on other sites More sharing options...
Herdswoman Posted September 14, 2004 Report Share Posted September 14, 2004 Best of luck, Hayley, and hang in there!Are you in the States? If so, get your MD's to advocate for you and push them to help make this happen. If nothing happens and they don't know why, they tend to blame the patient or worse, label them as "noncompliant".Remember, the squeaky wheel gets the grease. Squeak on, sister! Quote Link to comment Share on other sites More sharing options...
hayley Posted September 14, 2004 Author Report Share Posted September 14, 2004 no i live in england so have all medical treatment on the national health service but its a pain because nothing gets done and the waiting lists are so long.if i had thousands of pounds id go privately for treatment.sadly though i dont so im hoping that i can go into hospital sometime this year.dont get me wrong its not like i wana go in but i need to get my life back and get back to work havent been for nine months or had a life. thanx for replying. Quote Link to comment Share on other sites More sharing options...
morgan617 Posted September 14, 2004 Report Share Posted September 14, 2004 just keep bugging them till they get so tired of it, they do something. sometimes the only thing a woman has to hang onto is being a witch, (from delores claiborn) we just sometimes have to be very assertive, even if it irritates the doctor. it's his fault anyway. so go for it! morgan Quote Link to comment Share on other sites More sharing options...
blackwolf Posted September 15, 2004 Report Share Posted September 15, 2004 Ditto! I find my GP to be very "uninformed" even after supposedly having recieved "up to date information"You are most certainly not alone in this area.Be active in your care, even if it means changing doctors. NEVER be afraid to ask for referals or take info to your doc, they usually don't look so much to find info for just one patient. I often have a list of questions and papers I've printed/recieved for him.Blackwolf Quote Link to comment Share on other sites More sharing options...
hayley Posted September 16, 2004 Author Report Share Posted September 16, 2004 i dislocated my collarbone very painful but the doctors at the hospital were very nice to me.they even asked if i wanted my pots investigating but its already being investigated .they never asked that before how strange ha ha youve got to laugh or youll cry Quote Link to comment Share on other sites More sharing options...
corina Posted September 16, 2004 Report Share Posted September 16, 2004 Try to laugh Hayley, although it's very ironic how people turn out to be nice when they find out there is really something going on. How are you doing with the collarbone? Best wishes,Corina Quote Link to comment Share on other sites More sharing options...
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