ramakentesh Posted September 9, 2004 Report Share Posted September 9, 2004 My GP told me that the TTT is a definitive test for POTS, but i was reading a few people here had trouble getting diagnosed with this - and that it took a few goes to get diagnosed - primarily because they were having better days during testing. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted September 9, 2004 Report Share Posted September 9, 2004 (edited) If you have a response on the test it IS definitive to rule POTS in or out. However, some people may not show symptoms on one of their "good days". In that case, the medication they infuse may provoke symptoms. However, there are many medical tests that I'm aware of that occasionally give a false negative or a false positive. Among tests however, the TTT is pretty darned accurate.Nina Edited September 9, 2004 by MightyMouse Quote Link to comment Share on other sites More sharing options...
yogini Posted September 9, 2004 Report Share Posted September 9, 2004 Fortunately, the first tilt table test that I took was positive (very postitive). But then I went to see a neurologist who supposedly specialized in treating POTS. He did a second tilt test, which came back negative. (I think the difference was that I was taking florinef before the 2nd one. Although I stopped it a few days before, I think it affected my blood volume.) After the 2nd tilt test the Dr. told me I had overcome my POTS and that I didn't need to take any medicine. That turned out to be a disaster; a couple weeks later my heart started beating like crazy on my way to work and I wound up spending the night in the hospital. Five months later, I am still having symptoms. So the moral of the story is, if you think you have POTS, go with your gut. A single negative tilt test doesn't necessarily rule out POTS. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted September 9, 2004 Report Share Posted September 9, 2004 actually, the moral of the story should have been to not let someone try to diagnose you via TTT while you're on meds! I was required to have stopped florinef for at least 2 weeks prior, and was not permitted ANY vasoactive substances for 24 hours prior (no caffeine, no decongestants, no vitimins, etc).Any autonomic specialist should have known better -- Florinef stays in your system for quite some time. Bummer that you had to live through that, but glad you know better now! Yes, you'd be correct to say that a negative TTT doesn't rule out autonomic problems, especially if the test was done while you're on meds.Nina Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.