gertie Posted May 8, 2008 Report Share Posted May 8, 2008 Does anyone know if this is dys/POTS friendly? I couldn't find it on the list. thanks. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted May 8, 2008 Report Share Posted May 8, 2008 Many people on the forum are on neurontin for various reasons (some for headaches/migraine and others for neuropathy). I take 600 mg 2x a day, and other than initially being a little drowsy, I've had no problems. I was actually on a much, much higher dose after my spinal surgeries--it made me a bit sleepy but at the time, that didn't matter to me b/c I wasn't working or driving.Nina Quote Link to comment Share on other sites More sharing options...
goldicedance Posted May 8, 2008 Report Share Posted May 8, 2008 I was on very high doses of Neurontin for POTS, including migraines. I was taking 3600 mg a day.I have now switched to Lyrica (150 mg twice a day). My doctors, including Dr. G, thought Lyrica was a much "cleaner" drug.Lois Quote Link to comment Share on other sites More sharing options...
lloppyllama Posted May 9, 2008 Report Share Posted May 9, 2008 I took 300mg once daily and then I was supposed to eventually go to 3 times a day, however after about 2 days of taking it, I was increadibly ill from it. I was passing out left and right, and a lot of other issues. However I was also very sick at this time, more of the peak of my illness, so I do wonder if that had something to do with it. I might be interested in trying it again here in the future and see if I would have more luck, or react the same. Quote Link to comment Share on other sites More sharing options...
pat57 Posted May 9, 2008 Report Share Posted May 9, 2008 I have taken it. Felt slightly sedated initially,needing about 3 days to adjust. After that no problems. I was taking 400mg 2X daily. Quote Link to comment Share on other sites More sharing options...
flop Posted May 9, 2008 Report Share Posted May 9, 2008 It is supposed to be very helpful for nerve pains. In the UK doctors aren't supposed to prescribe Lyrica/Pregabalin unless the patient has already tried Neurontin/Gabapentin (mostly due to cost issues I think).Flop Quote Link to comment Share on other sites More sharing options...
goldicedance Posted May 9, 2008 Report Share Posted May 9, 2008 Flop, my friend across the pond:The situation here is the same with Lyrica. It is much more expensive than Neurontin. I was on Neurontin for some 10 years. My neurologist says thet the effectiveness of Neurontin seems to diminish the longer one is taking the drug so that the dosage needs to be increased.Insurance companies like the cheapest drugs, particularly when the patient will be on them for a long time. Provigil is another drug that is difficult to get approved.Lois Quote Link to comment Share on other sites More sharing options...
jump Posted May 9, 2008 Report Share Posted May 9, 2008 I had a good friend on neurontin for nerve pains (she doesn't have POTS) and she found the drug to be a godsend for the first three years. Then she started developing tachycardia as a result of the medication and had to stop taking it. I guess this is an unusual side-effect, but the chances of having it increase the longer you take it, and also increases if you go on and off and on again. jump Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.