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mrach

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Everything posted by mrach

  1. I feel for you, may be u should ask your doctor for Beta Histein ( or Serk in UK) and see what he thinks
  2. Congratulations and I wish you all the best in your career uote name='Lulu' date='Aug 10 2006, 02:17 PM' post='61348'] Just checked & final grades were posted <drum roll> ..... ..... ..... ..... ..... ..... I made it!! I can't believe I'm *officially* a senior in nursing school now! Just 3 quarters left!! I'm overwhelmed to think I made it this far--some of you know I had some REAL UPS & DOWNS getting here! I'm stunned in considering I might actually be able to succeed in doing this? WOW! I can't wait to be a "real" nurse! Just wanted to share my good news! It can be done!! The best part is I have 6 glorious weeks off!! Hooray!! Thanks for letting me share I'm so happy!
  3. Did you have your adrenal glands check you may have an adrenal insufficiancy that is causing you low electrolytes
  4. About insomnia get relaxation tapes ( I like THe LInden MEthod ) , Meditate,meditate, meditate, always eat carbs complex plus protein especially chicken or turkey around 6-7 p.m. helps the thryptophan get through the brain barrier and it helps you to relax , drink a cup of Vallerian tea or Chamomile tea at bed time, pray. I was not able to sleep for more than 3-4 hours before. You can also try one only session in hypnosis for relaxation and ask the hypnotist to record it on a CD and listen to it. Do notr neeedto pay for more. Good luck something Thank you for answering. Are you still a vegetarian?
  5. Hi, I am a suspected POTS, not yet diagnoseed, therefore I am walking like a zombie for the last 9 months, no medication nothing, and the earlest TTT they scheduled for me is for the 28 of September, probably I am the hyreadrenergic type as I am extremely anxious when upright ( walking is better than just standing) and the symptoms are better in tha late afternoon, actually I became afraid to walk outside because I feel ++ dizzy just losing balance and walking like a drunk ( no vertigo though), shockingly lightheaded (as if my head is half-empty) I have lost around 12 kg, and my legs are very shaky and weak. What bothers me most is the feeeling that I no longer have a brain...I am very afraid to travel for the same reason because I feel I am going to pass out any moment. This all idiotic thing statrted after I was on raw foods diet for 4 months and I was feeling perfectly healthy, was full of energy and looked great, when all of a sudden I had a feeling that I am going to drop and it started from there... My questions are: 1) is that normal for POTS 2) have you tried any diets (at the moment I am eating meat after being vegetarian for 10 years) 3) have you tried any alternative methods: herbs 4) what kind of vitamins are you taking 5) did you take any medication prior your diagnosis 6) my tolerance for activity is very low except for half an hour walking in the evening, can you tell me any exercises I can do safely 7)I used to be extremely active and productive person, now being able to just sit is killing me Sorry, for the English language I am new to the language Thank you very much
  6. Did you have a MRI to exclude MS ( double visoion is typical for MS
  7. thank you honey, can you tell me how did you fly back to USA when you were so sick.I have on top of dizziness, acute attack of frightening severe dizziness as if the world tilts sideways , blurring of vision,dry throat and horrific feeling of doom and tachycardia. nobody had a clue for the past 8 months, on monday i saw a neurologist (finally after 8 months of asking for it, i live in Canada....0 I am extremely anxious but I am afraid to take anything for the anxiety just herbs and relaxation meditation....quote name='Dizzy Dame' date='Jul 26 2006, 11:19 AM' post='60035'] Heya, *deep breath* it's a long story. I first started showing POTS symptoms last summer when I was living in Hawaii. They mainfested as dizziness, fatigue, and chest pain, and palpitations but the dizziness was by far the worst symptom. I went to several doctors, but they couldn't find anything wrong with me other than in increased heart-beat on standing, so they told me I had an anxiety disorder and prescribed xanax. Well, the xanax made things much worse, and I ended up fainting as a result of it. I ended up in the hospital on the cardiac ward because after fainting an ambulance was called and the EMT's saw my blood-pressure was 60/40 and I couldn't speak or hear. After getting IV fluids and spending several days in the hospital, my BP normalized a bit when I was laying down, but as soon as I stood up, it would go back to the 80's/50's and my heart rate would go from the low 60's to the 140's-170's. My doctors knew something was horribly wrong, but had no idea how to help me, so I was sent home and told to stay in bed. I was bedridden for about 6 months, and eventually had to move back to the east coast beacuse the doctors in Hawaii had given up on me. In January I went to Vanderbilt and was admitted for a 2-week medication trial by Dr. Biaggioni. While I was there I was officially diagnosed with POTS and Neurally Mediated Hypotension, and was put on Midodrine. Since then, the midodrine really helped some of my symptoms and I was able to get out of bed, and even go to school part-time last semester. However, my symptoms have worsened over this past summer, and now we're suspecting that I have Lyme disease as a cause of my POTS and other neurological symptoms. My POTS/NMH symptoms are listed below: 1. Severe increase in heart-rate when I stand >40 bpm 2. Chest pain, dizziness and nausea upon standing 3. Decrease in systolic and diastolic BP when standing (unmedicated) 4. Heat intolerance 5. Intolerance to caffiene and alchohol 6. Exercise intolerance I have other symptoms that some POTS patients have that may also be attributed to Lyme: 1. Sensitivity to sound, light, and vibration 2. Joint pain 3. Numbness/burning/tingling in hands and feet 4. Sleep disturbances (I wake up in the night with what feels like adrenaline surges that cause my heart to race and my blood-pressure to spike) 5. Visual distrubances ranging from flashing lights, to "floaters" My treatments are as follows, some are doctor-prescribed/suggested, others are things I've learned from trial-and-error: 1. Not to stand for more than a few mintues: this means I use a wheelchair if I have to walk long distances, I use a stool in the kitchen for when I cook or do dishes, and a stool in the shower. 2. Gatorade 3-4 liters a day. 3. Tons of salt on all my food. 4. Waist-high compression hose in the spring, winter and fall, knee-high in the summer (beacuse they're so hot) 5. Eating 4-6 small meals a day, not too much fatty food or sugar 6. B-6, B-12 and folic acid seem to help me That's about it. I really hope you find a doctor that can give you some answers! That will be crucial to your recover.
  8. Many thanks to all of you for your answers. Can you tell me what are your symptoms or how did they start because the doctors just have a suspision but they have not confirmed POTS yet and I am suffering for the last 8 months since all this started. Tell me about your daily life as well, please. Thank you Thank you, can you tell me more about your diet and the vitamins you are taking. How was your diagnosis confirmed
  9. I need to fly overseas for 8 hrs . i have just been diagnosed with POTS and i would like to know what the dangers of long flights are, and if there are any precautions that need to be taken.
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