mrach

I had this kind too- but I thought it was a herpes of some kind because it was itchy and I had a herpes before. Any one of you had herpes of whatever kind before this/ May be the immune system geyts so low with POTS that any existing herpes in the body just flares up

I HAD HORRIFIC NIGHTMARES WHEN MY POTS STARTED;THE MOMENT I STARTED TO HAVE MORE NORMAL DREAMS I KNEW I AM GETTINGBETTER. I THINK IT IS STRESS RELATED

How can I see them

Thank you very much for your kind words and explanations....

Dear Sisters and Brothers in misfortune, I guess I find more help and answers with you than with the medical personnel I am communicating at the moment, so if I bother you with my ?s, please, excuse my ignorance. My problem is why I am so anxious since these symptoms started it was like a overnight transformation from a very laid back and nonchalant girl I became a frightened chicken. Yes, My POTS started with 3hours of severe tachy, blushing, suffocating, feeling that I am dying and so on and with 5 doctors standing and looking helplessly at me, they just let me go through the whole think under "supervision". I am constantly lightheaded, weak in my legs and so on. My main problem is why I am so anxious to go out, to interact with people standing, to travel, even to go out of familiar environment ofmy misery for the last 9 months. Do you think it is because my brain does not have enough oxygen and that makes me anxious, or it is a part of the symptom, or I am developing generalized anxiety on top of everything, or may be I am going crazy. I feel like trapped, I want to live this life not be a prisoner of my own mind, yes,may be I will never be the same energetic, easy-going person I was but at least some sense of normalcy. Please, any suggestions how to fight this are greatly appreciated Maria

Hi Dionna, I have the same problem, at first I started eating less frequently, eat more complex carbohydrates( meat does not make you fat) with every meal, eat dates, avocados, MOst important relax after and before eating lie down to help the parasympathetic system override the sympatheticand allow the intestines to absorb and digest better, eat more rye bread,. Stop eating milk too much Ca it also promotes weight loss9 I was eating akilo of wholesome milk before, it helped me when I stopped).

I had something similar not as bad when my symptoms first started though not as bad, I just tried to ignore and not border myself with...

Sorry, dear. Sometimes I have the feeling that the doctors in NOrth America have not taken the Hippocrates Oath, it is unbelievable. If you can not solve a problem, send me to someone who can, for GOd's sake...It is not as if you an accountant or something like that, you are a Doctor for Heaven's sake. This can never happen in the third world country I am coming from, because on the way out of the hospital people will just shoot him... My advice: Pray for a good doctor. Wish you better lday tomorrow g

Thank you, for all theanswers, it seems my impression was that we have to drink Gatorade as an alternative for salty water in order to get the BP up, I did not know that there are other reqirements as well...

As a not yet Dx POTs, I was really perplexed to see that the doctors recommend Gatorade ,when it is full of sugar and artificial dyes, are we not supposed to avoid that. Do you know of any healthier alternative to Gatorade?

Please, share your tips for some quality of life when you are unable to go out ....

Thank you, everybody for your answers

HI, since you are functioning so wel, can you , please, then describe your symptoms and tell us if you are on treatment or not

Thank you, girls

Hi, everybody, Going through your posts I can not help but admire your strenght and bravery, I can not even believe that 9 months ago I was completely unware of POTS and its tragedy, I guess my main concern was how to look thin and sporty ha-ha-ha..What I was thinking today while reading the multiple side effects of the meds you are taking is : - is thetre actually some or any benefit of taking the medications, my impression is that the treatment of POTS is still in tha dark area of experimenting - how are POTS patients treated in Asia, or third world countries or even ex-Soviet Union and is POTS even existing there in such a horrible form - I have a background in neuroscience and I can not help but think that may be there is some kind of immune inflammation of thebrain on some level caused by may be environmental or some other kind of toxin Therefore iot seems important to establish if there is any connection between this syndrome and geographical location. Is this syndrome a "privilige" to the highly developed countries and why? Any info onthis will be greatly appreciayted ad may be beneficial for us all