P SUDIK

Hello everyone,just want to say hi and add my thanks too! Pat

Amy,I am thinking about you and praying for you,Love Pat

Hello Heidi,so glad all went well,I hope you have a speedy recovery,Take good care,gentle hugs,Pat

Hello Maggy and welcome,this is a comforting place,where you will find people with similiar stories and experiences. It really helps to know we are not alone,so again welcome, Pat

Morgan I am so happy for, enjoy Hugs,Pat

I am no longer able to shop in large stores,I can however sometimes go to a small market or small drug store. I grab onto a cart.but I have shop quickly.

Anyway my point is people talk to me,and I literally walk backwards,and keep walking out of the store, while people are talking,(cause I can,t wait to sit in the car) I seem like I am being rude,anyone have this experience?

Emily and Nina ,Thank You for keeping us updated,Melissa ,know that you are thought of often,and that I am praying for you daily,I hope you can feel the love and hugs I am sending! Pat

I am very impressed,congratulations ,it must feel great,Pat

Good luck with your new job,I hope this change will make you feel better!Wishing the very best Pat

I also say yes to almost everything you said. As far sitting,if I sit with my feet up it does help me. The other thing that differs from you ,I am far from shy,I am however more quite since having POTS (4 yrs.). I am reallllllllllllllllllllllllllllllllllllllllllllllly with you as far as the unknown and unexpected of POTS. I used to think if got sick ,you would go to the dr.or in our case many drs. and you got well,not so with POTS. Pat

Does anyone have therapy in your home?I am not able to go to PT.I am going to ask my Dr.to give me an Rx for home PT.I don't know if he will or that I can even do it, but I would should like to try. Good luck to everyone on getting what you need. Pat

I am so happy for you and your family,and a little jealous,the ocean and falling asleep to the sound of waves, are 2 of my favorite things. Have a glorious time,and don't forget to share the details,Pat

Water just goes right through,so far Gatorade is the only thing that really works for me.The only flavor I drink is punch usually mixed with a little water and a couple squeezes of orange,lemon or lime juice. I would try it again,but you are sure right about different things working for different people.

Good luck, take care Pat

Hi I live in an Eastern suburb of Cleve. Oh. Summers have been very hot and humid,did not bother me before POTS.Today it is 90 and very sticky,very hard to cope with.The rest of the year it's ok except for a few extremely colds days in the winter. Pat

Amen to that!!!!!!!!! When I first got POTS,I kept saying(to any dr. that would listen) " I have no stamina" I had back surgery,so for the longest time,drs.said" you are getting older it is taking you longer to bounce back from surgery"(not the case),but it took about 18 months and 19 drs. to get a dx of POTS.

Tell your sister as far as I am concerned,she got that right! Pat

I also have problems with bloating and feeling bad after eating,as far as the nausea,I am almost always nauseated,from mild to very severe. I find eating small amounts,more often does help.

This brings me to more questions???? I am never sure if my eating problems are from gastroparisis or POTS,or both?? I am wondering what percentage of the POTS patients have gastroparisis? Do they go together? What came first the chicken or the egg?

Thanks Pat

Angela, sorry for your bad experience!!!!!! I was dx with POTS 4yrs ago,after testing positive to 2 TTT,I did not faint either time,I have many near syncope episodes,but have never fainted. I don't beleive you have to faint to be dx with POTS.???????? Also my blood pressure does not go down but my heart rate goes way up. Take care Pat

Thanks for sharing ,it sure is beautiful there!!!!!!!!!!!!!! Enjoy Pat

So so sorry Morgan,thinking of you,Hugs Pat

Nicole,I want to let you know I care and I am praying for you,Pat

Mary,I feel the posts before mine, say it all,so I'll just wish you the best Pat

Hi Angela,caffeine is dehydrating,how about some gatorade,it's hydrating and adds calories,Pat

Doctorguest, I don't think many of us are surprised to hear that so many of these docs. are not familiar with POTS. Thanks again for your support,Pat

Thank you for your presentation,and for your advice on the forum,both are greatly appreciated,Pat

Angela I am truly sorry your feelings were hurt,people really do say dumb things,some intentional,some not.

I have been overweight my entire life,even now when I am so ill. Trust me people have said many nasty and mean things to me,the remarks are very hurtful. As I get older,I guess I just roll with the punches,hope you will be able to do that.I know that I am a good person fat or thin,as I am sure you are.One other thing,being heavy forever,I used to think telling someone "your so thin" was a compliment,I guess we all have alot to learn. Oh I also get that"you look good" all the time ,that still bothers me. Pat