labas_2u@shaw.ca

Hi Ernie.... I have cateplexy and it is really scary.....I get it only when I'm sleeping. It comes on when I am sleeping and I am trying to wake up only I can't move. I am totally paralyzed for a brief period of time...just enough time to scare myself to death.....

Thank you for your reply.... Prior to starting the Altace, my blood pressure jumped on standing up along with the tachycardia. I also have pooling in my legs if I stand still for longer than 5 minutes. After starting on the Altace, it seems my blood pressure drops now sometimes on standing. It never did this before.

Thank you Laura.... This forum is wonderful.....I thought I was the only person who had these problems...... I too went for years trying every medication out there for hypertension and tachycardia but NOTHING worked at all. I stopped taking meds for about 8 years and didn't feel any worse but then had some really bad attacks that I just had to do something. My hypertension was swinging out of control and my tachycardia changed. I have a cardiologist here but he wants me to go to Toronto for the Ablation procedure because no medication works for me. I started to read up on the internet about my symptoms and discovered on this web-site that that is not a good idea. I am glad I researched it! I also saw on the web-site that there are two POTS specialists in Montreal. I am thinking of making the trip there (12 hours from here) but, I think that it might be worth it. I first have to check to see if it the service is also in English as my French is not the best but manageable. Laura... do you know if our health coverage is good in the States for this condition? I know that some procedures are from where I live.. if the service cannot be provided within a certain distance, OHIP will pay the cost.

Thank you for responding Janine.... I have not been diagnosed with POTS.... I found the website by running through the medical problems I have been experiencing. I live in a small community up North and I doubt if anyone here has even heard of it. I was told about 15 years ago that I had Lupus but after seeing a specialist in Toronto, was told that I didn't ..... I have about 90% of the symptoms on the POTS Place website.... I realize about the diuretic but nothing seems to control my BP.....I drink a lot of fluids to try to counteract their effect.... POTS would not be any longer than the road I have been on Janine....... Thank you for your concern :0)

Laura...I see that you are from Canada too..... Are you seeing a specialist for POTS or just a family practitioner? There doesn't seem to be too much here to go for help....If you work....how do you cope with the fatigue??

Hi Rita.... I am so glad you replied..... I take 10mg of Alace and 1/2 tablet of 25 mg of hydrochlorzide(spelling?) I started taking it about a month ago because my blood pressure was all over the map. It was as high as 215/134. I havent' benn diagnosed with hypotension....but now that I take my BP at home.....it can go sky high OR drop by 18 (diastolic) when I stand up..... I was told to cut down on my salt intake.... Hi Laura...thank you for your reply... yes I have tachycardia and a recent ECG came back 'abnormal' but corrected itself shortly after...

Hi... I am having a problem with both hypertension and hypotension when standing... Any ideas?