sfr100

Hi! Are there any older POTS women on board who have been given a hormone replacement therapy patch to stop hot flashes and did they think that helped or hurt their POTS symptoms. I've just been given a patch 3 weeks ago to help me sleep better and I've seen a lot of posts where people feel their symptoms are better when their periods are stopped. The patch is starting periods again so I'm wondering If I'm better with or without HRT. Any ideas?

Does anyone else feel pressure in their chest and that their legs feel like lead when they get up from sitting? Susan

Sorry for the flood of questions but I'm curious about some things that have been mentioned to me as possible helping. Someone told me that hikers sometimes use Chia seeds to help keep themselved hydrated as the seeds retain 10 times their weight in water. Has anyone tried these and are they safe? I called the health food store and they don't sell these like they do flax etc. More pie in the sky? Susan

Has anyone tried Jin Shin ( a form of accupressure) for POTS symptoms and had any Luck? Susan

I'm able to function somewhat, so I am not lying down for most of the day. I'm sitting up and can take a short walk or do an errand.

Hi, I'm new and have a question. After my tilt table test my the electrocardiologist said proamatine would be good. But then my internist and him are worried about raising my blood pressure too much and not letting me try the drug. They said it was for people with low blood pressure. I thought it was only supposed to raise your supine blood pressure. My blood pressure has been running about 105-113 and about 105-120 standing up even though standing my HR is ove 100. Does this eliminate me from trying this med? Thanks. Susan. Or could I cut out florinef which I take .1 mg with salt and water which is already probably raising BP?THANKS!

I made my appointment in December and can't get in to see him until June? Any ideas for a faster appointment too?

tremulous feelings when upright. Is there any medication that can get rid of the tremors that run through your body when you've been upright for awhile. Thanks for any help on this. Susan I don't know if I'm posting right.

Hi I'm trying to see Dr G but couldn't get an appointment until 6 months. Any ideas about how to get in sooner. I've tried calling about cancellations. Thanks. Susan

Dawn, how did you know your Pots is the adrenergenic kind and how does that affect treatments and other medications. Thanks. Susan

Does florinef need to be taken in the morning or does it matter. Does it cause sleeplessness at night or does anybody split doses?