JenniferInOhio

Seriously - the lifesavers worked great. I sucked on one right before I would take the next glassful of prep. I put the prep in an empty propel bottle...it is easier to chug in a bottle than in a glass...and then right after I chugged it, I put the lifesaver back in and swirled it around to get the taste out. It worked great for me.

Hopefully, Morgan will chime in here. She has some great tips for prep that really made all the difference for me.

Angela ~ thanks for all of the info. I don't even know that much about my SVT. Keep us updated on the POTS vs. NON-POTS thing!!!

First thing I thought of was e coli with the bloody diarrhea.

Melissa ~

I hope the doctors can resolve this situation for you. You have been through so much.

Wow Pat - I wouldn't be embarrassed - I'm just glad you're okay.

So, I don't understand the med thing. You were supposed to take the medicine every 11 hours and because you went longer between doses, this is what happened?

Scary!! I have SVT runs (around 16 beats really fast) that last for about 2 seconds, but they are scary because they take my breath away and I feel dizzy for 2 seconds. Then my heart goes back into rhythm like nothing ever happened. I have these maybe once per month. It was caught on a monitor, but no one ever seemed to think it needed treated.

LOL.

Thanks for all the info. After running the Celexa by my cardio, I am going to try to start taking a small dose everyday. Wish me luck. I am also going to add exercise or some sort of yoga to my day.

ajw - My PVCs and SVT are not a concern. The SVT come and go within 10 seconds. Usually a burst of 16 fast beats and then back to normal rhythm. I have this maybe once a month. Doctor is not concerned. PVCs come and go, but not on a daily basis.

Thanks for the info!!

Went to my primary care physician today. He doesn't know a lot about POTS so I hope this is an okay drug to take for anxiety and someone who has PVC and occassional quick runs of SVT. Does anyone have any experience with this drug or know anything about it?

Angelika,

I'm pretty sure it is anxiety and not POTS. But, POTS has to be acclerating it in some way. This is ridiculous. After yesterday's big cry-fest, I seem to be somewhat better today.

Are we more susceptible or something? My panic attacks have increased from maybe 1-2 per year over the course of 10 years to now once per month. It is usually triggered by a "symptom," like my left arm hurts or chest pain or a weird feeling in my head. I know it is health anxiety. My health anxiety turns into panic. I'm smarter than this. I know I'm okay, but, what I can't figure out is why I can't make them stop.

For instance, last night I was in bed and my chest was hurting, although not bad, and my left arm felt funny. Well, this happens to me A LOT, and I tried to tell myself, "Okay, you are fine. You've had these feelings a lot and you are always fine." I knew I was fine, but, my body goes ahead and leaps in front of me and starts to panic. I am willing myself, pleading with myself to calm down, but it is like my body and my mind won't come together and cooperate. Once I start, it doesn't stop. I took a xanax and it took me an hour to calm down, shaking all the while. I hate the shakes. I feel so weak. Such a weak, pitiful person. Most people think I'm so tough and strong (I put on a good front). But, I'm really just this horribly weak individual who can't get a grip on myself.

I don't know what I expect in replies. I just had to get this off my chest. I need to do yoga or something, but I don't even know where to begin to help myself.

I have a B12 over 1000 with no supplements or vitamins. I have asked my hemotologist and pcp and they don't think it's a problem - it is always flagged on my lab results.

Yes, I believe infections/colds hit us a little harder and for longer.

I think there are a lot of old posts about this topic. You will find differing opinions on it. I have had a flu shot the last couple of years. I did fine except for the sore arm.

Yay Pat!

I'm currently a stay-at-home mom. I have a master's degree in Speech Pathology and worked until I was pregnant with my second child. I don't know if I'll go back or not. Health-wise, I could do it...I didn't quit because of POTS.

I'm not saying this condition is nursing 101, it is far more complicated, I am saying that's what almost all doctors or nurses will say the problem is, with those particular symptoms, because they have no clue what else it could be. I would guess the doctor that got this thread started with his very quick diagnosis was thinking the same thing most other doctors uninformed about OI do. And I am guessing that's what K meant and I agreed with her. This just comes from personal experience....morgan

Morgan - I totally understand what you are saying. I agree. I was being sarcastic in my earlier post - but it wasn't directed at you (I just wanted to clarify)

Hope you feel better soon, Amy.

I figured as much.

Yes, I had anemia about a year ago. I have low iron, but it is still in the "normal" range. I think it must be because we have had cooler weather here in N. Ohio. My fingers and toes are always cold. Although, I have noticed that my fingernails still look weird even when I'm all toasty warm.

Too bad some doctors don't know about Nursing 101 . Mine didn't know about Nursing 101, she only knew about Psych. 101

Just wondering...there always seems to be a new symptom popping up

Hi!!