JenniferInOhio

After mono when I was 18. My heart raced all the time but I just thought I was out of shape. Was undiagnosed until age 35

My natural instinct is to cough if I have a run of palpitations. I think I read somwhere that bearing down, massaging carotid, and coughing could get a certain type of arrhthymia under control. I'm not sure if that is accurate though.

Thank you all for the tips. My hubby is great and will do all the carrying and such. I don't need to wear my heart monitor, but sometimes it gives me peace of mind, know what I mean? However, I'm thinking I'll just pack it in a suitcase because I will constantly be checking it, and that CAN'T be good for my anxiety!

From what I hear, flu symptoms appear pretty quickly and the primary symptom that makes it so awful is the severe achiness. If you're mildly achey, I'd say it was just a cold. Most people say they feel like dying.

Raynauds is not that uncommon, and I would imagine many here have it. I do. It is also caused by beta blocker usage. It's all related to circulation.

I've never flown as an adult so I'm pretty nervous. Obviously having POTS thrown into the mix is worrying me a bit more. I'm afraid I am going to have a panic attack on the plane. I know I need to hydrate and wear my compression stockings. It will be a 3-4 hour flight. Any other things I need to know?

Can I wear my heart monitor through security and onto the plane or will it cause total mayhem? If not, should I just put it in my bag to check and put it on after I get on the plane? I don't know whether having access to my heart rate will make things better or worse. Thoughts?

No haven't done the tilt test yet as I'm having a hard time with my doctor referring me. I will try and get a referral from a different doctor. I do notice when I'm sitting or laying down my pulse is 60ish but when I stand up it jumps to the high 90's. Does that sound normal? Feeling frustrated with these doctors:(

Thanks again,

Laura

Yes. Those rates sound like mine. Climbing up stairs (13 steps in my house) can take it up into the 120's.

I've had tinnitus for years - sometimes worse than other times. I think the general population experiences this on a large scale so I don't think it is a POTS symptom. Also, any high frequency hearing loss (happens as we get older) can cause tinnitus.

I was told it was anxiety and that I needed to see a therapist - that's the standard diagnosis for a young woman coming in with those complaints.

Anxiety can be a symptom of POTS, but it is NOT the reason for your symptoms. A regular cardio is not as good as an electrophysiologist for POTS.

My symptoms are tachycardia, exercise intolerance, heat intolerance, occasional lightheadedness, lots of pvc's and arrhythmias.

Glad your experience was a good one! Don't have a lot of those!

I think our limbs tend to "go to sleep" faster than normal people. Tingly sensations are a part of that.

Gravatar working now!

I tried to upload file from my computer and failed. Also tried Gravatar and failed.

My lower right eyelash line was twitching ALL through the summer and fall. Not constantly, but several times a day. Drove me crazy. All of a sudden this month, it has subsided - I have no idea why it started or stopped.

Well, I did get one this morning. And said several prayers on the way that I wouldn't have an adverse reaction! So far, so good. I know the flu would be horrid to get with POTS!! I haven't had the flu in years but I remember having it as a child and it was the worst!!

Just reading your post makes me Potsy. The standing without rest and lack of food/drink would have made me miserable at the end of the day and I'm pretty functional with my POTS.

What do your Drs say? I've always gotten one and done well, but I'm more potsy this year so wondering if it will exacerbate symptoms.

Anyone have arrhythmias, SVT and do ok?

We decided to wait it out with no new meds - just my beta blocker that I had been on. This was back in March. Symptoms are back now so I am seeing my EP next week. He will probably go with something similar to Wellbutrin but different chemically so as to not have another reaction. Possibly Zoloft? I'm still confused as to why anti-depressants work for blood pressure. If not the anti-depressant, he said florinef. I don't want either

Sarah, I'm so sorry to hear of your troubles. I only have short bursts of SVT - I can't imagine them going on for longer! I also have episodes of nonsustained v- tach. Because my svt is so short-lived and the vtach is nonsustained, i'm only treated with a beta blocker. The v-tach is scary though. Anywy, I'm hoping you find a good Dr that can help!

My EP tried this with me earlier this year. It was a bust. After taking it for a week and a half, I started itching like crazy and had hives for 7 weeks until it got out of my system. So, who knows if it would have helped. My Dr was putting me on it for similar reasons as you.

I could have written your post. I've been feeling weird in my head too. Almost dizzy - but not. Mostly I get the feeling when sitting. My cardio thinks it's my blood pressure - it's low and possibly blood is pooling when I sit. Had this on and off for a couple of weeks.

Thank you . I started having pain about 6 months ago and my last ultrasound was late Aug. I still have pain, so I assume it's still there. It measured 1.4 cm in Aug so not big. I just keep thinking they will want to take it out since it's complex and I worry about blood pressure. Mine is 80s/50s.

I will pray for you. Do you mind sharing your symptoms?

With a beta blocker around 100

I was wondering how POTS people would fare during surgery. Specifically blood pressure. If we are already low, how do they keep it up?

Medicgirl - I am so sorry to hear about your ovarian cancer. I have a small complex cyst on my left ovary that hurts on and off. They are watching it, but I'm still concerned.

Thank you all for your replies. It helps to know that this can be normal for Potsies. I just thought it was strange that it happened while sitting. It happened about 9 months ago - same thing with the sitting. Has never happened from standing - which I think WOULD be more normal. I am at the ovulating phase of my cycle and was sick with a bad cold earlier in the week, but I've been over that for a couple days now. I'm a pretty well functioning Potsie so I rarely have symptoms, but when they do happen it's scary and I can't imagine this happening everyday like it does for some of you