MikeO

@PistolI have had 2 TTT tests both of these indicated a Neurogenic origin of the hypotension as i had the BP drop with little of no change in HR (3 beats or less). have done the ortho tests at the clinic i am at now with the same results. One other thing to note is I have consistently had sudden drops in BP. This has been observed in the Hospital setting numerous times while being monitored "nurse will alway come rushing in to see what is up" also the supine hypertension has been noted as well and will have the head of the bed raised to 30 degrees (always bring down the bp"  

At Cardio we have seen the drop in bp after exercising 170/90 and after 108/70ish. The one day i described i never even got out of the gate. Weight gain does concern me as well.

I have had 4 stress tests first two i failed 2nd one is what got me the 4x Cabg. second two we did with not withholding the Metoprolol and i passed them. BP's were not exactly stellar but the heart rate was under control as i could not hit my adjusted HR.   

This month i do have a lot of support going on. This week i see a Neurologist (hope this is not a waste of time) and next week i go in for a ultrasound study for my PVD. I will be seeing the Vascular/Cardiologist right after. Also the clinic will be calling today in response to this weekends issues.

I can imagine when your HR went up was scary. How high did you get?. I have had issues getting tacky while taking certain med combo's think the worst i saw then was a HR of 132 while getting up from the couch. 

@PistolI will follow your advice next time this happens. My only concern is when my BP spikes high it can and will drop low. When i was in Cardo rehab this would drive the Nurses up the wall. On one of the days I squeezed a 180 so we waited then i went to 190 so we waited then hit 200 which got me wheeled down to the ER. When they took my BP it dropped to 135.

@PistolI just had the Blood tests for both my Kidneys and Liver back in June. Both came out normal. So not sure what is up. I did notify the Clinic as my BP's are up as well "180/115" at one point over the weekend. So some quality time on the "evil recliner" kept me from going in to the ER. I dropped down to 103/70. (this drives me nuts)

It's Sunday so made a good meal. Pretty much is all i can eat. Pork recipe is easy.

https://dinnerthendessert.com/ultimate-garlic-pork-loin-roast/

@MomtoGiulianaThanks for the link.  Is informative.

I am starting to feel that the main root of my issues is that i am experiencing some form of Baroreflex Dysfunction. While i have had POTS like symptoms i think it was due to med combinations as i have been stabil with the tachycardia since getting off the hypertensive drugs and going onto Mestinon. 

I did find a good article explaining the Baroreflex disorders https://www.researchgate.net/publication/338489000_Baroreflex_Dysfunction sure seems to match what i go thru.

I find this statement to be true for me as i can withstand a large swing in BP's "normal day for me is 171/117 to 109/75" I will have some symptoms when on the low side but i won't pass out.

In chronic baroreflex disorders, patients can withstand
very low blood pressures because of an expanded autoregulatory range. Symptoms usually appear when the mean blood pressure, when measured
at the level of the heart, falls below 75 mm Hg .

I am hoping to get a diagnostic soon.

1 hour ago, Pistol said:

when are you opening your restaurant?

Hopefully soon  in the meantime lunch is served.....

@PistolI am surrounded by woods as well. So far the deer have been pretty good and leave stuff alone. 2 years ago they did munch up my bushes in the front yard. I don't do anything with the apples so they do a good job of cleaning up in the fall.

Do Guys even know what one of there are?

@dancer65I will give yogurt a try. Thanks!

38 minutes ago, cmep37 said:

(at worst it was 138/125 and I felt like someone was sticking a red hot poker through my skull)

Oh i would love to get these BP's I am constantly hitting 170's/105's. if i take any down time "evil recliner" i will drop into the 70's/50's 

2 hours ago, dancer65 said:

I know if I have eaten too much as my stomach swells and is huge . 

Not sure what the worst symptom is but eating has not been friendly. Starting to think that trying to get along with it is the route to take and find what works even though if i find a food that was ok one day may not work the next time "frustrating" 

17 minutes ago, JennKMac said:

I actually don't have an increase in BP on standing, just the HR increase

Can i ask what meds you are taking?

16 hours ago, DebbieDysautonomia said:

Yes! I can barely eat at times. And when I do I feel so full so fast. It’s unfair! 

I know the feeling have been dealing with this as well. Have you tried changing up your dosages? not saying it's the right thing to do but sometimes upping a med does have a bad reaction been thru this before. I would ask your Doc.  Also i would pay attention to the MFG of the meds you are taking if your pharmacy changes it up may affect how you feel. i have experienced this along with other folks that i know.

Well the good news is the Lasix worked and the weight for the most part is off and the bloating went down.

3 minutes ago, toomanyproblems said:

Are you talking about heart rate or BP? If BP you mean systolic 180-225?

Sorry should have clearer. I am talking about the systolic BP. My diastolic can easily hit 105-117 range. 

Hi,

I gained literally 5 lbs overnight night. Not the first time this has happened. I do notice a change in my urinary output/habits when this happens I also bloat up a bit. Cardiology assures me this is not due to any heart failure and has me take Lasix for a few days to dump the water weight.

Can this happen when the NS is not firing on all cylinder?

Pretty sure i did not get into any really salty either as i have been only grazing on some homemade tomato soup "made from fresh tomatoes"

Mike

9 hours ago, CJ65 said:

Same here

Are you using any drug combos to control the highs and lows?

Oh great food may be setting me off. Kinda makes sense. started having more issues as i upped my food intake

26 minutes ago, Delta said:

Mama and babies!! Great pics. What kind of apples?

Not sure what kinda of apples. But they are sour for sure.

10 minutes ago, DebbieDysautonomia said:

thank you for your reply. It’s like being stuck between a rock and a hard place

No, I thank you for bringing this subject up is relevant.

@DebbieDysautonomiaI would get POTS like symptoms while taking certain meds then other symptoms. I am taking Mestinon and while it has worked i am getting a sinking feeling i am not handling it well. BP's went up "drug related?" Either way some drugs make me feel really sick. Not sure if this is due to an ANS issue and loading up on the drugs due to digestive issues? but i do get this. 

I get the swaying as well and is different than when I am hypotensive. As i read into it this has more to do with you peripheral system. Where the swaying gets me the most is when i close my eyes like taking a shower i will start to get off balance. There is a good test for this "Romberg's test"