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Outaker

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  4. Anyone feel like there suffocating ?

    in Dysautonomia Discussion

    Posted

    1 hour ago, Hutch said:

    When it first started, I went to my family doctor, she didn’t seem concerned about it, but when at doctor office, my oxygen level was reading higher 97 percent, but I’m going set a appointment up tomorrow, it comes on every time I try to do anything, iv noticed the higher my heart rate the lower my oxygen seems to be, but haven’t seen it drop below 92 percent and still feel it when at 97 percent so I don’t know, but it for sure comes with being up right and very little activity, I’m starting to wonder how well my heart is pumping, I work with my heart rate always 120 or above for about 4 years seen in 160 for couple hours at a time, Manual labored trades is all I knew so I took the it won’t kill you saying to heart, and just push on and let me heart beat as fast as it wanted. I wish I could go back and not have did that lol, heart disease also runs on my dads side, h*** he just had bypass surgery last Monday, I’ll find out something hopefully, 

    Are you a smoker?

  16. Please help. :( does this seem familiar to you?

    in Dysautonomia Discussion

    Posted

    2 hours ago, Pistol said:

    @Outaker - I am so sorry you are having such a bad time. All of these symptoms are familiar to me - I have hyperadrenergic POTS. The BP fluctuations with the consitant diastolic elevation make me suspicious since this is very common in hyper-POTS. It sounds like you need a medication change. For me the cardiologist usually would switch the BB or add another med like calcium channel blocker. Also SSRI helps with hyperPOTS due to regulating the neurotransmitters. I get seizures and syncope from POTS too and before episodes I usually get cold, chills and yawning. I was told the yawning - which you also describe - is a sign of cerebral hypo-perfusion ( not enough blood flow to the brain ). The CP and shortness-of-breath are often caused by circulation changes in the chest as well as the hypertension. --- If I were you I would see the prescribing physician and go with his/her  recommendations. Keep us posted!!!!

    Pistol how do I go on disability :( 

  22. Please help. :( does this seem familiar to you?

    in Dysautonomia Discussion

    Posted

    Hi guys here are my symptoms O_O

    Wild fluctuations in pulse I can go from 60 testing to 120 on standing easy. This is on metoprolol. But when on metoprolol it goes down without it it stays up crazy 
     
    Frequent pvcs now that I can feel loud thumps upon standing up. 
     
    My sinus arrhythmia is very active and just breathing In makes my heart race from 70 to 110 
     
    My resting heart rate without metoprolol seems to be very high in 90-100 range
     
    I have had shortness of breath for the past 2 years with very deep breaths once a minute and dyspnea at times it goes away and at times i can’t take a deep breath without yawning 
     
    I have had pre Syncope 3 times which has caused me to go down to the ground and end up in er. 
     
    My blood pressure fluctuates wildly with the diastolic always being elevated. My systolic at night typically goes to 160 while it does stay at 110-130 during the day. 
     
    I have frequent head aches on right side of head.
     
    Consistent pain in left side of chest and fascinations all over body.

  23. I don’t understand what’s happening.

    in Dysautonomia Discussion

    Posted

    Hi guys,

     

    33 male here.. very confused and scared since last month where I had an incident in my bath tub where my pulse shot up to 150.. completely freaking me out making me think that I was having a heart attack. I went to a cardio who said I was fine and nothing was wrong with me and prescribed me propanolol 10mg of which I only take 5mg a day 

    Regafdless since then I got a pulse monitor Apple Watch and a oxi meter and I have a few questions 

    i notice that I hade a lot of sudden crazy jumps in pulse when I move around or stretch :( 

    my laying down pulse is low 60”s but when I get up I get this weird fluttering in my chest and pulse goes to 110 initially but then starts coming down after a minute to 80 is this pots? Or must it be sustained???

    Can propanolol really have such a big impact on controlling pots ?

     

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