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Everything posted by Outaker

  1. Klonopin is what i started on and now have weened off since i figured out my disease.
  2. I fly all the time! I take the clonazepam before the flight.
  3. Clonidine is good stuff, in my experience.
  4. you ok? this happens alot to me.. Im gonna try moxonidine next
  5. Where do you live ? Can you get clonidine ?
  6. how high is your bp and is it sustained?
  7. Anyone else have this? where you feel adrenaline just hits your heart and your heart starts racing ._,
  8. What’s your plasma norepinephrine
  9. Whats your plasma norepi levels
  10. What do you like about this medicine
  11. What were you’re plasma norepinephrine levels ?
  12. Hello? Are these normal ranges?
  13. Are you spontaneously hypertensive ?
  14. Can anyone else confirm? Are my supine levels normal?
  15. Hey rich thank you for responding. You make an interesting point about the norepinephrine it’s actially higher supine than I thought .. wow it’s 600
  16. I have spent every day researching this disease since October 2018 the time I got sick. my norepi levels ssupidne are 400 my standing norepi is 1200 i get violent surges in adrenaline regardless of position. My trek for a solution has led me to Moxonidine which is only available in Europe-it has proven to be much safer and effective than clonidine. i am currently using carbidopa which I believe may have huge potential for treating hyper pots since it stops creation of dopamine. https://clinicaltrials.gov/ct2/show/NCT00685919
  17. im literally stuffing my face with potatoes every day
  18. Hows your potassium? If i keep mine above 4 I get no PVCS crazy..
  19. i get surges in blood pressure after eating
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