merkat30

finalllllly !!!!!!! I have been suffering this for last year it awful my hands are always puffy and sensitive my ankles to I thought it was water retentions or of the electrolyte I drink or pooling of blood it just horrid all the doctors ive asked not now what it of iv fluids do take it down as well I noticed big difference with my face swelling I could see my chin! I do hope somone knows what to do about this as it doesn't hurt as such but is making things very sore to wash hair type hold grip things

hi me again just thought I post this …. I been looking see if anyone else got sick after a operation? mine started dam smack in middle of c section six years ago after my little girl was born I had what they called a heart murmur couldn't turn to the left felt nauseated dizzy I lost a lot blood tmi it was on my partners feet he was at my head 😲this didn't happen with my first csection I was awake for both they clean me up moved me a lot I was under the impression was meant not move u after spinal block ? all my problem's with my bp pressure my heartrate my extreme weakness started after this 22oct 2012 I lost a lot my freedom independent I cant go anywhere alone I struggle wash my face etc most days let alone look after my children as I should without help my mum and husband does anyone think this caused my pots? or is it me just being over thinking …. am in uk

fludrocortisone or mestion that is the question? I have a terrible time with meds trials for my pots ive last six year I will be starting new one this week out these two which u think will help the most I have high bp and low high heartrate I drink two three litres water a day I take two sachet's of diorlyle a day {kills my stomach bladder} I have had loose non stop for year more after walking eating generally living I take fexofenadine 120 a day this seem to help if I take half a morning half a night I stay away most foods have very safe food diet its so depressing I miss my food! I have a lot pot attacks I get tremors shakes temperature can not control my heartrate goes really high so does my bp this on top joint pain extreme weakness flushing shortness breath cheast pain arm pain I always have nasty what feels like bone pain to all the time in my legs they are so weak .now that me probley missed thousand symptoms legs pooling headaches etc but u no all basic pot stuff anyway ….guess my questions are ...which do u think will help the most as ivibriane made me end up in hospital so really pinning all my cards on this 28going on 100 …..😟

Am due to have a appointment with dr Gupta for my pots soon pinning all my hopes on him to help with my pots symtoms 😀

Yes !! Ooh u looking well u all better....no it just good make up ! Ppl dont seem to get just cause u can do one thing u can do it all time ..it frustrating isnt it . U must be better cause u try hard be normal tday then when u need the help they dont belive it as bad as u say .

Hello everyone hope u not feeln to awful tday . I am a mum in her twentys not feeln to great! I have pots low heartrate also possibly mast cell non dignoused yet ....been refferd to a immunecolgist hopefully help as i have been flushing and my lips swell everything i eat i feel sick all time and i cant keep nout in either end...i have nasty rash keep apearing up allover my cheast my bp on standing is high sitting very low .my heartrate is awful at mo my palptations are worse and i have just been informed i am not in catchment area of the clinc i was refferd to in shefield england hoping to be refferd to york clinc ...it just feeling like i got no doctor to help me i am doing this on my own it seem to be getting worse i have been in and out of hostpital ane all month they been no help really saline then home ...i have had some very nasty nurses and some lovely ones two . Doctors asking me what it is how u spell it what can i do to fix it ovs if i new that i would fix myself! I have had midrone and beatablockers both no help both lowered bp one my pulse more than it should hoping for some magic advice ....i guess hope u all well ...as can be

been going to A&E at my local hostpital for saline iv when it got to much for me it helps but i also feel very poorly after and during . My mast cells play up awful it does help that and my pots but i seem to get verrry fatigued after it ive been in bed all day feel worse than i did going in very high heart rate not so high though now but rest my body not knows what do with it self palpitations all night high adrenaline surdges was awful . I now wondering why i bothered .normally i get it have good two days after anyone else?also here in england they wont prescribe it so i have go A&E get it they no nothing about dysautomia there so they not to nice .hope u having good spoons day 😊