Claire

Fire watcher, are you not scared of having CKD? How do you cope? Thanks

I actually did have 2mini strokes, like the doctors feared, and while in the hospital they slowly weaned me off the Fludrocortosone and I just finished weaning yesterday. I was told never to take it again, and I won’t. So far, the Pots has not come back even on the days I didn’t take it while weaning, but we’ll see what happens when it is completely out of my system. I don’t know how long that will be. Anyone have any idea? I took it for 7 months at 0.1 mg. The drs. Put me on Clonidine 2times a day and said that would help. I don’t know. Just be careful when this drug makes your blood pressure high. Not worth a stroke.

Has anyone taken an antidepressant with amitriptline? My doctor says no to Lexipro. He said both together will make my Pots much worse. Any suggestion would be helpful. Thank you.

I am wondering how you weaned safely? On 0.1 mg I cut it in half and by the middle of the day had terrible heart pain, low blood pressure, high heart rate. I became so scared, I took the other half and within 15 minutes, I was fine. Now, this is causing me such high blood pressure, my Dr thinks I am going to have a stroke, so he wants me off. How in the world do I wean off of that dosage? My blood pressure will crash again, be out of breath and not able to walk in the mornings without passing out. What to do?

I am new to this site. Please could anyone share their experiences weaning off fludrocortisone, anyone on it who had kidney disease?

Did you ever get off it sucessfully. It’s making me feel so sick that I want off. Does anyone have experience with successfully cutting down their dosage that they could share?