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Everything posted by DaniH

  1. I have bluish lips too. Actually, along parts of my lip line there are dark purple areas. I would guess that the reason your lips are blue and get more blue upon exertion is POTS (I also have POTS (dysautonomia) as well as EDS, Chiari, MCAS so I feel you). Just like how blood rushes to our stomach after we've eaten, and can cause post-prandial (after a meal) POTS symptoms like extreme fatigue, increased hear rate, lower blood pressure, etc. We feel this after a meal because the blood is rushing away from our head, lower body, etc and goes to the stomach so the heart has to pump harder to move blood around to all parts of our body. I think when you are exerting yourself, you are increasing your heart rate to oxygenate your muscles, lungs, brain and the body thinks of the extremities as second class citizens for a bit. Its main concern is oxygen for the major muscles and organs. This will cause tour lips to get blue. Same with laughing. It is an adrenaline rush which does a similar thing as exercise. Our bodies only know processes. It doesn't know the difference between laughing hard, exercising or running away from a tiger. It reacts in similar ways. Really, the first thing that happens are autonomic processes. Things your body does that are controlled by the parts of the brain that don't require any input from you. It just reacts and that saved lives back when the threat was real. I would suggest you look into brain stem compression from Chiari Malformation which is often tied to POTS. It may be that you have dysautonomia from a structural issue rather than just POTS. Lastly, get your iron checked as well as B12. If you are anemic, it will make 3 everything else with POTS worse. I know that post is pretty old now but I have been looking for proper treatment for my issues for 14 years and still searching. I hope you've found answers but if not, i hope this helps or helps others who have found themselves on this website.
  2. There is another POTS specialist in Hamilton. His name is Dr. Juan Guzman. Unfortunately in the long run it didn't work out but one very good thing about Dr. Guzman though is that he will try almost anything. At one point I was injecting myself erythropoitin to see if my POTS would improve and I'm still on IV fluids because he started it. I currently have no doctor. I heard there was a POTS doc in London, ON but he is on the neurological side of POTS. Which may suit myself and others better if, like me, you also have EDS and Chiari Malformation. I will try to find his name.
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