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carmen

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  1. Hi everyone, I posted earlier on all of the symptoms that I am having, and am currently waiting on the doctors to help me. Nobody here (in Saskatchewan) seems to have heard of POTS, and yet it is so similar to what I have. My symptoms are seeming to be worse. I was so lightheaded all morning, I could barely move. I am so weak that I can barely have a shower! Just wondering if anyone knows of any doctors in canada that can help me out, that know of POTS, because it's been over a month here, and none of the doctors here have a clue. Thanks! Carmen
  2. Hi everyone, Recently I have been going through a rough time. I am a teacher and I started having these attacks while I was teaching. What would happen is I would get extremely lightheaded, my vision would go blurry, my hearing went muffled, I felt like I was losing control of my whole body. I felt like I was going to pass out or die. I was shaking and sweating. It was a terrible feeling! These episodes started happening more often. I went to the doctor all the time, we checked for blood sugar problems, panic attacks, and all sorts of other things. Then we started to monitor my pulse. We realized that upon standing, my heart races to around 150 bpm. I never noticed my heart was racing through all of this, I just knew that I felt awful. So I had several ECG's taken, and I wore a holter monitor. I had another attack a couple of days ago, this time I had chest pain too. I felt like I was going to die. It was so scary. I ended up staying in the hospital for 2 days. The cardiologist did an ultrasound of my heart and after being monitored for 2 days, everything was normal. Well, of course it was, I was lying down the whole time. When I stood up, my pulse would go from 80 to 130. My blood pressure sometimes gets lower upon standing too. But the lightheadedness does not happen every time my heart races upon standing. the lightheaded attacks where I feel like I'm going to die come out of the blue (usually after I've been up for a while, or have had a normal day). The cardiologist has ordered a tilt table test for me. I asked him if what I had could be POTS, he said it could be (but I didn't get the feeling that he knew what I was talking about). He didn't take the ultrasound while I was standing up either. So I was sent home from the hospital, and I still don't know why all of this is happening! I am feeling so frustrated and discouraged at this point, and am questionning my sanity. THe doctors can't find anything wrong, yet I am totally debilitated because I feel so awful. I am terrified of having those attacks, and the doctor has told me not to work or drive a car or be alone until we find out what is going on. the doctor also gave me a beta blocker called metoprolol. This has slowed my resting heart rate from about 100bpm to around 75. The morning time for me is awful. I feel like a truck has run over me when i wake up. I usually sleep all night very well, but when I wake up I feel awful! I try to stretch before I stand up, and then by the time I walk to the bathroom, my pulse has gone up to 140bpm. I get extremely shaky, feel nauseaus, and need to go lay down again for fear that I will pass out. I have been off work for 2 weeks, and it is not looking like I will be going back to work any time soon. Nobody around here (I live in saskatchewan, canada) seems to have ever heard of what I'm experiencing, and I feel like I am losing the respect I have earned because people are skeptical about what I'm going through. Most people around me think it's stress. I never had these feelings before. I had a terrible stomach flu at Christmas time and it has been happening since then. I am so scared and frustrated and the only thing I could identify with was POTS. Can somebody please tell me what happens to them when they have an episode? How do you feel all the time? How do you carry on a normal life? I need to know how to cope with this, I am getting married in 4 months and I love my job. I just want things back to normal. Is there a cure for this? Please help, anything would be appreciated.
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